NHPCC Engage Webinars

This session will focus on surgical planning for more complex procedures, such as cardiac and joint replacement procedures. Presenters will describe their approaches to ensuring safe procedures and productive post procedure recovery, and coordinating across the HTC care team to support and educate patients.

Dr. Magdalena Lewandowska will focus on cardiovascular procedures, an increasingly important topic as more patients with bleeding disorders age and require cardiac interventions. She will review key considerations related to antithrombotic therapies, rebalancing agents, and overall medication management—including when certain medications should be held—as patients prepare for and recover from cardiac procedures. Dr. Lewandowska will also highlight how clinicians plan surgeries and individualized treatment strategies to ensure that patients with bleeding disorders can safely access the cardiovascular care they need. Dr. Doris Quon will address considerations for joint replacement surgery, including collaborative decision-making with patients about pursuing surgery, educating patients about the procedure and recovery, supporting patients pre and post-op, coordinating with the orthopedic surgeon, and ensuring appropriate post-op care – such as advocating for additional inpatient hospital time. Finally, Cindy Bailey will discuss her role as a physical therapist in the pre- and post-op period for orthopedic surgeries. She will touch on factor coverage for pre-op and post-op exercise sessions and home exercise program (HEP) approaches to pushing the patient’s range of motion and strengthening based on stage of healing. Cindy will also discuss how she assesses tissue healing and how she collaborates with the hematologist and the surgeon to inform future factor coverage.

This webinar is open to all disciplines working within hemophilia treatment centers that are part of the Regional Hemophilia Networks. Free CEUs are available for nurses, nurse practitioners, physicians, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners) and ATHN. Please join us!

This NHPCC Engage webinar will explore the role of genetic counseling in the HTC setting. Join us if you are curious about:

• The value genetic counselors bring to multidisciplinary care within the HTC
• How genetic counseling expertise could help your HTC
• Current roles of genetic counselors across HTCs
• How to collaborate with laboratory genetic counselors

Presenters will describe common and unique genetic counselor (GC) job responsibilities and how GCs engage with and support patients. They will also talk through what collaboration between providers and GCs looks like and why, from the provider's viewpoint, it is helpful to have a GC on the HTC team. Speakers will also touch on the benefits of collaborating with laboratory genetic counselors when ordering genetic testing and interpreting results. Presenters will share several cases to illustrate collaboration and demonstrate the impact of genetic counseling in the HTC context.

This webinar is open to all disciplines working within Hemophilia Treatment Centers that are part of the Regional Hemophilia Networks. Free CEUs are available for nurses, nurse practitioners, physicians, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners) and ATHN. Please join us!

This session will explore three projects focused on making improvements to the experience of comprehensive care for patients and/or HTC staff. Presenters will share the inspiration for the changes they have made to comprehensive care, as well as operational elements of the projects and their lessons and takeaways.

Becca Shaheen, HTC Quality Improvement and Program Coordinator with Children’s Minnesota, will share about her reminder phone calls to patients in which she runs through a comprehensive care appointment checklist to ensure patients are prepared for their visits and bring all necessary information to clinic. Marsha Hurn, Social Worker with the Bleeding and Clotting Institute in Illinois, will discuss a time study her HTC implemented to decrease the length of time for comprehensive care appointments. Finally, Laura Singer-Fox, Physical Therapist, and Emily Wheat, Assistant Professor, both from the University of Colorado HTC, will discuss a project focused on ensuring that women and girls with hemophilia A or B or vWD type 3 presenting to clinic receive physical therapy evaluations at the same rate as men and boys with these same diagnoses.

This webinar is open to all disciplines working within hemophilia treatment centers that are part of the Regional Hemophilia Networks. Free CEUs are available for nurses, nurse practitioners, physicians, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners) and ATHN. Please join us!

This session will explore four quality improvement projects focused on different aspects of healthcare transition.

Dr. Brendan Kleiboer, Pediatric Hematologist with the Hemophilia Treatment Center of Levine Cancer Center and Levine Children’s Hospital in North Carolina, will share how his HTC is updating the process for distributing transition readiness assessments and using results to guide education delivered to the patient. Dr. Kelly Bush, Pediatric Hematologist with Rady Children’s Hospital in California, will share her team’s work to implement a personalized bleeding action plan as a tool to help patients learn about medications and treating bleeds. Dave Rushlow, Social Worker with Cowell Family Cancer Center HTC in Michigan, will discuss his HTC’s work with young adult patients and using a self-care skills assessment to guide the process of setting goals to stay healthy. Finally, Linda Vo, Social Worker, The Ohio State University HTC, will speak to her HTC's work to increase the rate of completed initial transition visits at her adult-only HTC as patients move from a separate pediatric HTC.

Presenters will discuss their project planning and implementation processes, project successes and challenges, and lessons learned. This session is designed to create a space for collective learning about QI projects – including in-process projects – while also celebrating the successes of making incremental small changes in HTC practice!

This webinar is open to all disciplines working within hemophilia treatment centers that are part of the Regional Hemophilia Networks. Free CEUs are available for nurses, nurse practitioners, physicians, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners) and ATHN. Please join us!