NHPCC Engage Webinars

This session will explore three projects focused on making improvements to the experience of comprehensive care for patients and/or HTC staff. Presenters will share the inspiration for the changes they have made to comprehensive care, as well as operational elements of the projects and their lessons and takeaways.

Becca Shaheen, HTC Quality Improvement and Program Coordinator with Children’s Minnesota, will share about her reminder phone calls to patients in which she runs through a comprehensive care appointment checklist to ensure patients are prepared for their visits and bring all necessary information to clinic. Marsha Hurn, Social Worker with the Bleeding and Clotting Institute in Illinois, will discuss a time study her HTC implemented to decrease the length of time for comprehensive care appointments. Finally, Laura Singer-Fox, Physical Therapist, and Emily Wheat, Assistant Professor, both from the University of Colorado HTC, will discuss a project focused on ensuring that women and girls with hemophilia A or B or vWD type 3 presenting to clinic receive physical therapy evaluations at the same rate as men and boys with these same diagnoses.

This webinar is open to all disciplines working within hemophilia treatment centers that are part of the Regional Hemophilia Networks. Free CEUs are available for nurses, nurse practitioners, physicians, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners) and ATHN. Please join us!

This NHPCC Engage webinar will explore the role of genetic counseling in the HTC setting. Join us if you are curious about:

• The value genetic counselors bring to multidisciplinary care within the HTC
• How genetic counseling expertise could help your HTC
• Current roles of genetic counselors across HTCs
• How to collaborate with laboratory genetic counselors

Presenters will describe common and unique genetic counselor (GC) job responsibilities and how GCs engage with and support patients. They will also talk through what collaboration between providers and GCs looks like and why, from the provider's viewpoint, it is helpful to have a GC on the HTC team. Speakers will also touch on the benefits of collaborating with laboratory genetic counselors when ordering genetic testing and interpreting results. Presenters will share several cases to illustrate collaboration and demonstrate the impact of genetic counseling in the HTC context.

This webinar is open to all disciplines working within Hemophilia Treatment Centers that are part of the Regional Hemophilia Networks. Free CEUs are available for nurses, nurse practitioners, physicians, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners) and ATHN. Please join us!

This session will explore four quality improvement projects focused on different aspects of healthcare transition.

Dr. Brendan Kleiboer, Pediatric Hematologist with the Hemophilia Treatment Center of Levine Cancer Center and Levine Children’s Hospital in North Carolina, will share how his HTC is updating the process for distributing transition readiness assessments and using results to guide education delivered to the patient. Dr. Kelly Bush, Pediatric Hematologist with Rady Children’s Hospital in California, will share her team’s work to implement a personalized bleeding action plan as a tool to help patients learn about medications and treating bleeds. Dave Rushlow, Social Worker with Cowell Family Cancer Center HTC in Michigan, will discuss his HTC’s work with young adult patients and using a self-care skills assessment to guide the process of setting goals to stay healthy. Finally, Linda Vo, Social Worker, The Ohio State University HTC, will speak to her HTC's work to increase the rate of completed initial transition visits at her adult-only HTC as patients move from a separate pediatric HTC.

Presenters will discuss their project planning and implementation processes, project successes and challenges, and lessons learned. This session is designed to create a space for collective learning about QI projects – including in-process projects – while also celebrating the successes of making incremental small changes in HTC practice!

This webinar is open to all disciplines working within hemophilia treatment centers that are part of the Regional Hemophilia Networks. Free CEUs are available for nurses, nurse practitioners, physicians, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners) and ATHN. Please join us!

This session is the first in a two-part series focused on surgical planning. Join us for this first session to discuss team coordination and preparation for patient surgeries and other medical procedures.

The team from Georgetown University Hemophilia Treatment Center will share how their team prepares patients for a variety of common medical procedures and how they coordinate across the interdisciplinary team to set the patient up for success during surgery preparation and recovery. Michelle Cha, RN, will share her “behind the scenes” work on insurance, orders, notifying providers of plans, and more. Leah Kramer, LICSW, will discuss the psychosocial assessment she conducts with patients and how she approaches medical trauma assessment tied to surgery. Chris Dohrmann, DPT, will discuss how he works with patients preparing for orthopedic surgery. Finally, hematologists Gary Kupfer, MD, and Craig Kessler, MD, will address specific considerations in the surgical planning process, such as anesthesia and factor administration, and how they approach common surgeries, including obstetric procedures, dental procedures, colonoscopies, and cosmetic procedures. This session is open to all disciplines working within hemophilia treatment centers that are part of the Regional Hemophilia Networks.

Free CEUs are available for nurses, nurse practitioners, physicians, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners) and ATHN. Please join us!

Join us for an exploration of Hemophilia Treatment Center outreach efforts! During this session, we will hear from three HTCs with a variety of experiences in launching and sustaining outreach and satellite locations. Presenters will share about outreach sites that are one to twelve hours away from the main HTC!

Sidney Glass, Nurse Practitioner with Virginia Commonwealth University, will kick off the session discussing a new outreach site the HTC has established with a focus on supporting peds to adult transition. Sid will share the thoughtful steps taken leading up to the launch of this site – including conducting a needs assessment and taking a quality improvement planning approach – and the successes the team is seeing with this very new location. Racquel Brown, Nurse Practitioner with University of Kentucky HTC, will share about her HTC’s long-standing partnership with the Office for Children with Special Health Care Needs and how that partnership supports the HTC’s outreach. She’ll discuss her HTC’s use of a mobile clinic for outreach and will highlight the importance of relationships and trust in the success of outreach work. Finally, Becki Berkowitz, Registered Nurse and Outreach Coordinator with the Hemostasis and Thrombosis Center of Nevada, will share her deep experience coordinating outreach sites across Nevada, building novel partnerships with locations where HTC outreach takes place, and doing community education for local medical professionals as part of the HTC’s outreach efforts. All of the presenters will weave in practical information about packing all the equipment needed for outreach, staffing, and more. You won’t want to miss this session if you’re wondering how to get an outreach or satellite site started, how to keep one going, or how to build on your current approach!

This session is open to all disciplines working within hemophilia treatment centers that are part of the Regional Hemophilia Networks. Free CEUs are available for nurses, nurse practitioners, physicians, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners) and ATHN. Please join us!