NHPCC Engage Webinars
As part of our commitment to supporting professionals in the field, the NHPCC is pleased to offer a series of webinars—both live and on-demand—to engage multidisciplinary staff of hemophilia treatment centers (HTCs) across the country.
The NHPCC webinar series is designed to:
- Support the work of HTCs across a range of topics and issues, including quality improvement, transition of care, patient and family engagement, reaching underserved populations, and more
- Highlight emerging, innovative, and best practices happening in HTCs
- Provide an opportunity for peer-to-peer sharing across many HTC roles and disciplines
- Engage HTC staff across the nation
NHPCC Engage Webinars are designed and produced for HTC staff.
Earn free Continuing Education Units (CEUs)
The NHPCC offers free continuing education units (CEUs) for participation in both live and recorded webinars.
Please check back here for upcoming webinar information. If you have any questions, please contact nhpcc@athn.org.
Title: Building Skills for Transition and Life in Clinic and Beyond
Date & Time: November 17, 2023
from 1:00 pm
- 2:00 pm
EST
This webinar will focus on working with individuals living with hemophilia to build skills for transition and life through hands-on activities in the clinic and other settings. Dr. Nidhi Bhatt, Hematologist with St. Jude Children’s Research Hospital Hemophilia Treatment Center, will describe the development and implementation of a skills lab with hands-on interactive opportunities for patients to learn key transition skills, such as scheduling appointments and ordering factor. Becca Shaheen, HTC Program Coordinator, will discuss activities for building life skills implemented during a teen retreat through Children’s Minnesota’s Center for Bleeding and Clotting Disorders. Lucy Ramirez, Social Worker with Hemophilia and Thrombophilia Care at Rush University Medical Center, will discuss fun activities her clinic uses with younger patients to get them engaged with clinic staff, as well as interactive activities to build insurance literacy with teenage and young adult patients. Webinar speakers will discuss successes, challenges, and where their work is headed in the future. Join us to learn about these creative and highly interactive approaches to engaging patients in building skills to manage their health and thrive in life.
This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.
CE Broker # for PT CEUs: Live = 20-1121178, On-Demand = 20-1121180
At the conclusion of this webinar, participants will be able to:
- Explain the planning process that presenters used to develop skills-building activities.
- Summarize at least two approaches to skills-building in the HTC or HTC-related setting.
- Identify one skills-building activity/approach that could be adapted for the participant’s own unique setting, such as the HTC, camp, retreat, etc.
- Dr. Nidhi Bhatt, Hematologist, St. Jude Children’s Research Hospital Hemophilia Treatment Center
- Becca Shaheen, HTC Program Coordinator, Center for Bleeding and Clotting Disorders, Children’s Minnesota
- Lucy Ramirez, Social Worker, Hemophilia and Thrombophilia Care at Rush University Medical Center
Title: Systems and Approaches for Successful Communication and Collaboration Between a Pediatric and Adult HTC
Date & Time: October 27, 2023
from 1:00 pm
- 2:00 pm
EST
During this webinar, two HTC social workers will present their approach to collaborating on and communicating about healthcare transition from a pediatric HTC to an adult HTC. Betsy Boegeman, MSW, LICSW, LADC, social worker with the Children’s Minnesota Cancer and Blood Disorders Program, and Amy Wilson, LICSW, social worker with the adult M Health Fairview Center for Bleeding and Clotting Disorders, will discuss how they work both individually and collaboratively to support patients who are transitioning from pediatric to adult care. Presenters will share background on their centers’ collaboration, current practices and focus areas, practical strategies to implement to support patients who are transitioning, and future directions for their approach.
This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.
CE Broker # for PT CEUs: Live = 20-1114442, On-Demand = 20-1114444
At the conclusion of this webinar, participants will be able to:
- Describe an approach to communication and collaboration between a pediatric and adult HTC.
- Compare and contrast the pediatric social worker role and the adult social worker role as relates to healthcare transition in an HTC.
- Provide examples of how two social workers support transitioning patients.
- Betsy Boegeman, MSW, LICSW, LADC, Children’s Minnesota Cancer and Blood Disorders Program
- Amy Wilson, LICSW, M Health Fairview Center for Bleeding and Clotting Disorders
Title: Using the Psychology of Change Framework in Quality Improvement Efforts at HTCs
Date & Time: September 22, 2023
from 1:00 pm
- 2:00 pm
EST
This webinar will focus on the Institute for Healthcare Improvement’s Psychology of Change Framework. The Psychology of Change includes five interconnected elements focused on the human side of change, and is a tool designed to help organizations promote and sustain improvement efforts and activities. Dennis Deas, Improvement Advisor and Managing Director of Deas & Associates, will provide an overview of several key frameworks used in improvement science, such as Deming’s System of Profound Knowledge and Diffusion of Innovations, and the domains of the Psychology of Change Framework. Bill Berger, Special Program Administrator, Center for Treatment of Bleeding & Blood Clotting Disorders-Washington University in St. Louis, and Siera Gollan, QI Program Coordinator, Center for Blood Disorders at Augusta University, will discuss how they have applied principles from the Psychology of Change Framework to quality improvement projects in their HTCs. Please join us to learn practical tools to apply to your quality improvement work at your HTC.
This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.
CE Broker # for PT CEUs: Live = 20-1105168, On-Demand = 20-1105170
At the conclusion of this webinar, participants will be able to:
- Describe Deming’s System of Profound Knowledge and the role for Psychology of Change.
- State Rogers Diffusion of Innovations and the ‘attributes’ as described by Rogers that influence the individual to adopt a change or not.
- Share an example of how an HTC has incorporated components of the Psychology of Change in their work.
- Explain how you could apply a technique from the IHI Framework for Psychology of Change to your quality improvement work at your HTC.
- Bill Berger, MS, MSW, Special Program Administrator, Center for Treatment of Bleeding & Blood Clotting Disorders-Washington University in St. Louis
- Dennis Deas, MBA, Managing Director, Deas & Associates
- Siera Gollan, PhD, RN, Quality Improvement Coordinator, Center for Blood Disorders at Augusta University
Title: Developing and Implementing Healthcare Transition Policies in Hemophilia Treatment Centers
Date & Time: August 14, 2023
from 3:00 pm
- 4:00 pm
EST
During this webinar, presenters will discuss their hemophilia treatment centers’ (HTC) transition policies that support the move from pediatric to adult healthcare. Presenters will discuss approaches to establishing their policies and how transition policies are being implemented. Jacqueline Bottacari, of the Yale Hemophilia Center, will share her HTC’s process establish a transition policy that incorporated input from all disciplines. Lourdes Arvelo, social worker with John’s Hopkins All Children's Hospital Hemophilia Treatment Center, will discuss how her HTC iteratively developed a transition policy with parent/caregiver input along the way, and how the policy guides transition education and goal setting with patients and parents/caregivers. Beth Merz, social worker with the Johns Hopkins University Medical Center, will share background on how her HTC established its transition policy and will discuss key elements of policy implementation. Presenters will share key components of their transition policies, lessons learned, and possible future directions.
This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.
CE Broker # for PT CEUs: Live = 20-1096288, On-Demand = 20-1096292
At the conclusion of this webinar, participants will be able to:
- Describe how transition policies benefit and support hemophilia treatment centers’ healthcare transition efforts and activities with patients and families.
- Discuss at least two examples of how hemophilia treatment centers have approached establishing a transition policy.
- List key components of transition policies as shared by presenters.
- Lourdes Arvelo, LCSW, Johns Hopkins All Children's Hospital, Cancer & Blood Disorders Institute/Hemophilia Treatment Center
- Jacqueline Bottacari, LCSW, Yale Center for Bleeding and Clotting Disorder
- Beth Merz, LCSW, Johns Hopkins Hemophilia Treatment Center
Title: Whole Person Approaches to Transition
Date & Time: July 17, 2023
from 3:00 pm
- 4:00 pm
EST
During this webinar, presenters will discuss how they support patients to develop independence and successfully transition to adult healthcare. Javey Dallas, social worker of the Jimmy Everest Center for Cancer and Blood Disorders in Children, will share his approach to developing transition readiness, focusing on coaching patients to build the skills needed to lead self-advocacy meetings. Joseph Stanco, a nurse practitioner with Cohen Children's Medical Center and LIJ Medical Center, will discuss his center’s approach to providing a number of wraparound services to patients, including mental health screenings and sexually transmitted infection testing. Jenny Lamharzi, a nurse with the Washington Center for Bleeding Disorders, will speak about how her HTC continues to support young adults already transitioned to adult care by focusing on knowledge acquisition and relationship building. Presenters will also share their HTCs’ overarching approaches to healthcare transition and what they have learned from their experiences.
This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.
If you are a Florida licensee, this is the CE Broker approval# for this course is: Live = 20-1081928, On-Demand = 20-1081930.
At the conclusion of this webinar, participants will be able to:
- Describe at least one approach taken by a hemophilia treatment center to foster the independence of transition age patients.
- Discuss the key elements of how an adult HTC supports young adults who have transitioned to adult healthcare.
- Summarize how an HTC provides wraparound services.
- Javey Dallas, MSW, LCSW, Social Worker, Jimmy Everest Center for Cancer and Blood Disorders in Children
- Jenny Lamharzi, BSN, RN, Adult Bleeding Disorder Nurse Specialist, Washington Center for Bleeding Disorders
- Joseph Stanco, NP, Family Nurse Practitioner, Hemostasis and Thrombosis Center, Cohen Children's Medical Center and LIJ Medical Center
Title: Strategies for Assessing and Tracking Transition Knowledge and Skills
Date & Time: June 12, 2023
from 3:00 pm
- 4:00 pm
EST
Assessing and tracking transition knowledge and skills are key components of successful healthcare transition programs at hemophilia treatment centers (HTCs). During this webinar, attendees will learn about three different approaches to assessing transition knowledge and skills, starting with very young patients up to young adult patients. Julie Doyle, a nurse with Cincinnati Children’s Hospital Medical Center, will share her HTC’s knowledge assessment approach that starts as young as age 6. Jenny McDaniel, a pediatric hematologist with St. Jude Affiliate Clinic at Novant Health Hemby Children’s Hospital, will share her team’s approach to assessing transition knowledge with teens starting at age 14. Finally, Sam Cassisi, a Genetic Counselor with Michigan State University, will discuss a quality improvement project designed to assess and track transition knowledge across disciplines. Presenters will also discuss how they developed their approaches to assessing knowledge and skills, challenges along the way, how their strategies have evolved over time, and where their work may go in the future.
This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.
If you are a Florida licensee, the CE Broker approval# for this course is: Live Version: 20-1066040, On-Demand Version: 20-1066036.
At the conclusion of this webinar, participants will be able to:
- Describe three distinct approaches to assessing transition knowledge and skills.
- Compare and contrast strategies for assessing transition knowledge and skills.
- Identify specific examples of how hemophilia treatment centers address transition readiness at different ages.
- Samantha L Cassisi, MS, LCGC, Genetic Counselor, Michigan State University
- Julie Doyle, BSN, RN, Hemophilia Program Manager, Cincinnati Children’s Hospital Medical Center
- Jenny McDaniel, MD, Pediatric Hematologist, St. Jude Affiliate Clinic at NH Hemby Children’s Hospital
