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NHPCC Engage Webinars

As part of our commitment to supporting professionals in the field, the NHPCC is pleased to offer a series of webinars—both live and on-demand—to engage multidisciplinary staff of hemophilia treatment centers (HTCs) across the country.

The NHPCC webinar series is designed to:

  • Support the work of HTCs across a range of topics and issues, including quality improvement, transition of care, patient and family engagement, reaching underserved populations, and more
  • Highlight emerging, innovative, and best practices happening in HTCs
  • Provide an opportunity for peer-to-peer sharing across many HTC roles and disciplines
  • Engage HTC staff across the nation

NHPCC Engage Webinars are designed and produced for HTC staff.

Earn free Continuing Education Units (CEUs)

The NHPCC offers free continuing education units (CEUs) for participation in both live and recorded webinars.

Please check back here for upcoming webinar information. If you have any questions, please contact nhpcc@athn.org.

There are currently no upcoming webinars. Please check back soon.

Title: Culturally Informed Care for Amish Communities

Date & Time: November 1, 2024

 from 12:30 pm

 - 1:30 pm

 EST

Description:

This webinar will focus on reaching Amish communities, a geographically dispersed and underserved population residing in large swaths of the US. Amish people are known for living simply with minimal to no use of modern technology. In addition, many Amish communities do not routinely use standard medical or medical insurance. Because of their geographic isolation and large families, inherited bleeding disorders are more concentrated in affected Amish communities. On this webinar, Irene Boehlefeld, with the Hemostasis and Thrombosis Center at Akron Children's Hospital, Jen Maahs, with the Indiana Hemophilia and Thrombosis Center, and Kathaleen Schnur, with the Hemophilia Center of Western Pennsylvania, will discuss their work with Amish communities. Speakers will touch on how their HTCs interact with Amish patients and families, how their HTCs approach care and build relationships and trust, and how their HTCs interact with other systems (such as local hospitals) to support Amish patients. To provide real-world examples, speakers will also incorporate a patient case throughout the presentations. This webinar is relevant to any HTC actively working with Amish communities, as well as to HTCs seeking to reach any underserved population with the aim of establishing mutual respect and trusting relationships. This webinar is free and open to all disciplines. Free CEUs are available. Please join us!

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in many states. There is no cost associated with this webinar.

CE Broker #: Live = 20-1262839, On-Demand = 20-1262845

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  1. Discuss foundational aspects of each HTC’s approach to working with Amish communities.
  2. Articulate the cultural considerations that HTCs take into account when working with Amish communities.
  3. Identify how each presenter’s approach to reaching Amish Communities could be applied to the learner’s own context and strategy in reaching an underserved population.
Presenters:
  • Irene Boehlefeld, BSN, RN-BC, CPHON, Hemostasis and Thrombosis Center, Akron Children's Hospital
  • Jen Maahs, MSN, PNP, RN-BC, Indiana Hemophilia and Thrombosis Center
  • Kathaleen Schnur, LCSW, Hemophilia Center of Western Pennsylvania

Title: Improving Patient Access to Care In and Out of Clinic

Date & Time: October 7, 2024

 from 3:30 pm

 - 4:30 pm

 EST

Description:

During this webinar, three speakers will share how their HTCs are increasing patient access to care both during and outside of regular clinic appointments. Rebecca Babkiewicz will discuss Hemophilia of Georgia’s (HoG) approach to establishing outreach clinics that take care of patients using a mix of in-person care and telehealth. She will discuss how this approach has increased HoG’s ability to reach patients in certain geographic areas, including those lost to follow up due to transportation barriers. Tami Bullock, of University of Iowa Health Care, will provide an overview of her HTC’s community nurse program, and how it’s been designed to complement in-person care at the HTC and support patients in successfully caring for their bleeding disorders at home. Finally, Nicole Reynaud, of the Louisiana Center for Bleeding and Clotting Disorders, will discuss her HTC’s approach to providing nursing phone coverage 24/7 through a rotating nursing schedule and can provide in home infusion services through Acadian Health after hours to prevent unnecessary trips to ER. Each speaker will discuss how their HTC decided to implement that specific approach and share practical implementation tips, lessons learned, and future plans. This webinar is free and open to all disciplines. Free CEUs are provided. Please join us!

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in many states. There is no cost associated with this webinar.

CE Broker #: Live = 20-1251696; Online = 20-1251698

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  1. Identify three distinct approaches to increasing patient access to bleeding disorders care.
  2. Describe challenges and successes with each of the models shared for increasing patient access to care.
  3. Discuss how these three models for increasing patient access to bleeding disorders care could be tailored for use in your own HTC.
Presenters:
  • Rebecca Babkiewicz, MSN, RN, CPN, Director of Telehealth, Hemophilia of Georgia
  • Tami Bullock, RN-BC, BSN, Hemophilia and Thrombosis Clinical Coordinator, University of Iowa Health Care
  • Nicole Reynaud, RN, BSN, Hemophilia Nurse Coordinator, Louisiana Center for Bleeding and Clotting Disorders

Title: Navigating Musculoskeletal Bleeds in the Context of Contemporary Therapies

Date & Time: September 24, 2024

 from 4:00 pm

 - 5:00 pm

 EST

Description:

During this webinar, multiple disciplines from the University of Michigan Hemophilia and Coagulation Disorders will share their perspectives on a specific case pertaining to a patient experiencing musculoskeletal bleeds in the context of being treated with contemporary therapies, including non-factor replacement therapies. Each speaker will discuss aspects of the case that they handled and how they engaged with the patient and family. Speakers will share their questions and explorations about working with patients being treated with contemporary therapies. Collectively, the University of Michigan presenters will share insights about their team discussions on navigating musculoskeletal bleeds in the context of contemporary therapies and how they are reconsidering how to educate patients about bleeding. This webinar is free and open to all disciplines. Please join us!

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in many states. There is no cost associated with this webinar.

CE Broker #: Live = 20-1249712, On-Demand = 20-1249720

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  1. Articulate the challenges with identifying and managing musculoskeletal bleeding when a patient is on a non-factor replacement therapy.
  2. Explain how multi-disciplinary team members in an HTC can collaborate to support patients with bleeding episodes while on non-factor replacement therapies.
  3. Describe the collaboration between sports medicine and hematology in supporting individuals with bleeding disorders.
  4. Discuss decision-making and considerations tied to initial prophylaxis options and transitioning from non-factor replacement therapies back to factor replacement.
Presenters:

All presenters are from the University of Michigan Hemophilia and Coagulation Disorders Program.

  • Alice Cakebread, MSW, LMSW
  • Sherry Herman-Hilker, PT, MS
  • Allan Kucab, RN
  • Mary McGrath, MD
  • Jillian Simoneau, MD
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