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NHPCC Engage Webinars

As part of our commitment to supporting professionals in the field, the NHPCC is pleased to offer a series of webinars—both live and on-demand—to engage multidisciplinary staff of hemophilia treatment centers (HTCs) across the country.

The NHPCC webinar series is designed to:

  • Support the work of HTCs across a range of topics and issues, including quality improvement, transition of care, patient and family engagement, reaching underserved populations, and more
  • Highlight emerging, innovative, and best practices happening in HTCs
  • Provide an opportunity for peer-to-peer sharing across many HTC roles and disciplines
  • Engage HTC staff across the nation

NHPCC Engage Webinars are designed and produced for HTC staff.

Earn free Continuing Education Units (CEUs)

The NHPCC offers free continuing education units (CEUs) for participation in both live and recorded webinars.

Please check back here for upcoming webinar information. If you have any questions, please contact nhpcc@athn.org.

Title: Addressing Mental Health and Substance Abuse in the HTC Context

Date & Time: April 29, 2024

 from 12:00 pm

 - 1:00 pm

 EST

Description:

Join us for this discussion with participants of the Bleeding disorders Substance Use & Mental Health Access Coalition (BD SUMHAC). Presenters Joanne Fadale Wagner, Miranda Solem, and Dr. Emily Wheat will share background on BD SUMHAC and current activities and priorities, including the provider toolkit that BD SUMHAC has developed. Presenters will discuss the importance of assessing earlier and normalizing discussions about mental health and substance use disorder, partnering with other providers, and getting to know community resources and facilities. Presenters will also touch on approaches to preparing patients to advocate for themselves. Webinar attendees will walk away with concrete next steps and tools for how to support patients in their own HTCs.

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  • Describe the current activities of the Bleeding Disorders Substance Use and Mental Health Access Coalition (BD SUMHAC)
  • Discuss how HTCs can approach assessing for substance use and mental health concerns
  • Explain strategies for partnering with other providers
  • Describe community resources available to providers to support patients
Presenters:
  • Joanne Fadale Wagner, MSW, LICSW, CCM, Behavioral Health Clinical Manager, Dartmouth Primary Care & Dartmouth Psychiatry & Social Work Continuing Care Manager, Dartmouth Hemophilia Treatment Center
  • Miranda Solem, MA, LADC, Director of Community & Residential Mental & Chemical Health Services, Sanford Health, Minnesota
  • Emily Wheat, PhD and Licensed Clinical Psychologist, Assistant Professor, Pediatrics – Hematology/Oncology, Mountain States Hemophilia and Thrombosis Center, University of Colorado, School of Medicine

Title: Strategies for Connecting with HTC Patients and Families

Date & Time: March 22, 2024

 from 12:00 pm

 - 1:00 pm

 EST

Description:

Please join us to hear about three approaches to engaging and connecting with HTC patients and families. Lisa Littner, of the Cincinnati Children's Hemophilia Treatment Center, will describe her HTC’s work to establish and sustain a patient and family advisory board. Erica Brock, of the Hemophilia Outreach Center (HOC) in Wisconsin, will share about several support groups that HOC facilitates, including a Men’s Group and Mom to Mom. Finally, we’ll hear from Lora Joyner, of the East Carolina University Hemophilia Treatment Center, about a patient and family engagement event, Factor Fiesta, that her HTC has been putting on for a number of years. Presenters will share where they’ve been and where they are going with their work. Join us for this discussion!

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.

CE Broker # for PT CEUs:Live = 20-1186426, On-Demand = 20-1186432

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  • Describe three distinct approaches to patient and family engagement.
  • Identify common challenges and successes with patient and family engagement efforts in HTCs.
  • Discuss specific strategies that can be applied to an HTC setting to support patient and family engagement.
Presenters:
  • Erica Brock, Business Operations Manager, Hemophilia Outreach Center
  • Lora Joyner, MS, PT, PCS, PT East Carolina University Health Hemophilia Treatment Center
  • Lisa Littner, MPH, MSW, LISW-S, CHES, Program Manager, Hemophilia Treatment Center, Cincinnati Children's

Title: Supporting Patients in Finding Safe and Sustainable Careers

Date & Time: February 23, 2024

 from 1:00 pm

 - 2:00 pm

 EST

Description:

Join us as we learn about three different perspectives on how to support patients in finding safe and sustainable careers. Mary Brunkhart, School and Career Counselor with the Indiana Hemophilia and Thrombosis Center (IHTC), will discuss IHTC’s approach to school and career counseling and considerations for HTCs. Larry Forni, Senior Vocational Rehabilitation Counselor with the ACCES VR New York State Education Department’s Statewide Transition and Youth Services, will discuss how his agency (and similar agencies in other states) supports young adults in finding work that fits their circumstances. Finally, Jennifer Newman, Physical Therapist with the UNC Hemophilia Treatment Center, will discuss the Working for Success booklet she co-authored and provide a physical therapy perspective on supporting patients in identifying careers. Please join us to learn more about resources for supporting patients in developing their careers!

 

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.

CE Broker # for PT CEUs: Live = 20-1173250; On-Demand = 20-1173252

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  • Explain state-level vocational rehab resources that are available.
  • Discuss examples of how HTCs have supported patients in identifying career paths.
  • Articulate specific ways that physical therapists support patients in finding safe career paths.
Presenters:
  • Mary Brunkhart, MS.Ed, School and Career Counselor, Indiana Hemophilia and Thrombosis Center
  • Larry Forni, MS.Ed, CRC, Senior Vocational Rehabilitation Counselor, Statewide Transition and Youth Services, ACCES VR New York State Education Department
  • Jennifer Newman, PT, MSPT, UNC Hemophilia and Thrombosis Center

Title: How Camp Supports Independence, Skills-Building, and Social Emotional Development

Date & Time: January 19, 2024

 from 2:00 pm

 - 3:00 pm

 EST

Description:

This webinar will explore the connections between camp and the transition from pediatric to adult healthcare. Presenters will discuss how camp supports individuals with bleeding disorders to learn the skills to successfully and seamlessly move into adulthood. We’ll hear from three presenters about the power of camp and the work they do tied to creating positive and impactful camp experiences for youth. Tracey Gaslin, a Hemophilia Nurse Practitioner with the University of Louisville HTC and Chief Executive Officer of the Alliance for Camp Health, will discuss the links between camp and the transition to adulthood and share approaches to promoting life skills, such as self-infusing, and social emotional development. Amber Ferrell, Social worker with the University of Louisville HTC, will discuss her role as a social worker at camp and share how camp supports social emotional health and well-being for campers. Finally, Makenzie Sledd, Physical Therapist with the St. Louis Children’s Hospital HTC, will discuss her role as a Physical Therapist at camp and how she infuses camp activities with a physical therapy approach. Please join us for this discussion!

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.

CE Broker # for PT CEUs: Live = 20-1157926, On-Demand = 20-1157934

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  • Explain the value of camp in the context of healthcare transition and moving to an adult model of healthcare.
  • Identify how camp supports individuals to build independence and life skills.
  • Discuss the opportunities for integrating social emotional learning throughout camp.
Presenters:
  • Tracey Gaslin, University of Louisville HTC and Chief Executive Officer of the Alliance for Camp Health
  • Amber Ferrell, University of Louisville HTC
  • Makenzie Sledd, St. Louis Children’s Hospital HTC

Title: Building Skills for Transition and Life in Clinic and Beyond

Date & Time: November 17, 2023

 from 1:00 pm

 - 2:00 pm

 EST

Description:

This webinar will focus on working with individuals living with hemophilia to build skills for transition and life through hands-on activities in the clinic and other settings. Dr. Nidhi Bhatt, Hematologist with St. Jude Children’s Research Hospital Hemophilia Treatment Center, will describe the development and implementation of a skills lab with hands-on interactive opportunities for patients to learn key transition skills, such as scheduling appointments and ordering factor. Becca Shaheen, HTC Program Coordinator, will discuss activities for building life skills implemented during a teen retreat through Children’s Minnesota’s Center for Bleeding and Clotting Disorders. Lucy Ramirez, Social Worker with Hemophilia and Thrombophilia Care at Rush University Medical Center, will discuss fun activities her clinic uses with younger patients to get them engaged with clinic staff, as well as interactive activities to build insurance literacy with teenage and young adult patients. Webinar speakers will discuss successes, challenges, and where their work is headed in the future. Join us to learn about these creative and highly interactive approaches to engaging patients in building skills to manage their health and thrive in life.

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.

CE Broker # for PT CEUs: Live = 20-1121178, On-Demand = 20-1121180

 

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  • Explain the planning process that presenters used to develop skills-building activities.
  • Summarize at least two approaches to skills-building in the HTC or HTC-related setting.
  • Identify one skills-building activity/approach that could be adapted for the participant’s own unique setting, such as the HTC, camp, retreat, etc.
Presenters:
  • Dr. Nidhi Bhatt, Hematologist, St. Jude Children’s Research Hospital Hemophilia Treatment Center
  • Becca Shaheen, HTC Program Coordinator, Center for Bleeding and Clotting Disorders, Children’s Minnesota
  • Lucy Ramirez, Social Worker, Hemophilia and Thrombophilia Care at Rush University Medical Center

 

 

Title: Systems and Approaches for Successful Communication and Collaboration Between a Pediatric and Adult HTC

Date & Time: October 27, 2023

 from 1:00 pm

 - 2:00 pm

 EST

Description:

During this webinar, two HTC social workers will present their approach to collaborating on and communicating about healthcare transition from a pediatric HTC to an adult HTC. Betsy Boegeman, MSW, LICSW, LADC, social worker with the Children’s Minnesota Cancer and Blood Disorders Program, and Amy Wilson, LICSW, social worker with the adult M Health Fairview Center for Bleeding and Clotting Disorders, will discuss how they work both individually and collaboratively to support patients who are transitioning from pediatric to adult care. Presenters will share background on their centers’ collaboration, current practices and focus areas, practical strategies to implement to support patients who are transitioning, and future directions for their approach.

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.

CE Broker # for PT CEUs: Live = 20-1114442, On-Demand = 20-1114444

 

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  • Describe an approach to communication and collaboration between a pediatric and adult HTC.
  • Compare and contrast the pediatric social worker role and the adult social worker role as relates to healthcare transition in an HTC.
  • Provide examples of how two social workers support transitioning patients.

 

Presenters:
  • Betsy Boegeman, MSW, LICSW, LADC, Children’s Minnesota Cancer and Blood Disorders Program
  • Amy Wilson, LICSW, M Health Fairview Center for Bleeding and Clotting Disorders

Title: Using the Psychology of Change Framework in Quality Improvement Efforts at HTCs

Date & Time: September 22, 2023

 from 1:00 pm

 - 2:00 pm

 EST

Description:

This webinar will focus on the Institute for Healthcare Improvement’s Psychology of Change Framework. The Psychology of Change includes five interconnected elements focused on the human side of change, and is a tool designed to help organizations promote and sustain improvement efforts and activities. Dennis Deas, Improvement Advisor and Managing Director of Deas & Associates, will provide an overview of several key frameworks used in improvement science, such as Deming’s System of Profound Knowledge and Diffusion of Innovations, and the domains of the Psychology of Change Framework. Bill Berger, Special Program Administrator, Center for Treatment of Bleeding & Blood Clotting Disorders-Washington University in St. Louis, and Siera Gollan, QI Program CoordinatorCenter for Blood Disorders at Augusta University, will discuss how they have applied principles from the Psychology of Change Framework to quality improvement projects in their HTCs. Please join us to learn practical tools to apply to your quality improvement work at your HTC.

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.

CE Broker # for PT CEUs: Live = 20-1105168, On-Demand = 20-1105170

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  1. Describe Deming’s System of Profound Knowledge and the role for Psychology of Change.
  2. State Rogers Diffusion of Innovations and the ‘attributes’ as described by Rogers that influence the individual to adopt a change or not.
  3. Share an example of how an HTC has incorporated components of the Psychology of Change in their work.
  4. Explain how you could apply a technique from the IHI Framework for Psychology of Change to your quality improvement work at your HTC.
Presenters:
  • Bill Berger, MS, MSW, Special Program Administrator, Center for Treatment of Bleeding & Blood Clotting Disorders-Washington University in St. Louis
  • Dennis Deas, MBA, Managing Director, Deas & Associates
  • Siera Gollan, PhD, RN, Quality Improvement Coordinator, Center for Blood Disorders at Augusta University

Title: Developing and Implementing Healthcare Transition Policies in Hemophilia Treatment Centers

Date & Time: August 14, 2023

 from 3:00 pm

 - 4:00 pm

 EST

Description:

During this webinar, presenters will discuss their hemophilia treatment centers’ (HTC) transition policies that support the move from pediatric to adult healthcare. Presenters will discuss approaches to establishing their policies and how transition policies are being implemented. Jacqueline Bottacari, of the Yale Hemophilia Center, will share her HTC’s process establish a transition policy that incorporated input from all disciplines. Lourdes Arvelo, social worker with John’s Hopkins All Children's Hospital Hemophilia Treatment Center, will discuss how her HTC iteratively developed a transition policy with parent/caregiver input along the way, and how the policy guides transition education and goal setting with patients and parents/caregivers. Beth Merz, social worker with the Johns Hopkins University Medical Center, will share background on how her HTC established its transition policy and will discuss key elements of policy implementation. Presenters will share key components of their transition policies, lessons learned, and possible future directions.

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.

CE Broker # for PT CEUs: Live = 20-1096288, On-Demand = 20-1096292

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  1. Describe how transition policies benefit and support hemophilia treatment centers’ healthcare transition efforts and activities with patients and families.
  2. Discuss at least two examples of how hemophilia treatment centers have approached establishing a transition policy.
  3. List key components of transition policies as shared by presenters.
Presenters:
  • Lourdes Arvelo, LCSW, Johns Hopkins All Children's Hospital, Cancer & Blood Disorders Institute/Hemophilia Treatment Center
  • Jacqueline Bottacari, LCSW, Yale Center for Bleeding and Clotting Disorder
  • Beth Merz, LCSW, Johns Hopkins Hemophilia Treatment Center

Title: Whole Person Approaches to Transition

Date & Time: July 17, 2023

 from 3:00 pm

 - 4:00 pm

 EST

Description:

During this webinar, presenters will discuss how they support patients to develop independence and successfully transition to adult healthcare. Javey Dallas, social worker of the Jimmy Everest Center for Cancer and Blood Disorders in Children, will share his approach to developing transition readiness, focusing on coaching patients to build the skills needed to lead self-advocacy meetings. Joseph Stanco, a nurse practitioner with Cohen Children's Medical Center and LIJ Medical Center, will discuss his center’s approach to providing a number of wraparound services to patients, including mental health screenings and sexually transmitted infection testing. Jenny Lamharzi, a nurse with the Washington Center for Bleeding Disorders, will speak about how her HTC continues to support young adults already transitioned to adult care by focusing on knowledge acquisition and relationship building. Presenters will also share their HTCs’ overarching approaches to healthcare transition and what they have learned from their experiences.

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.

If you are a Florida licensee, this is the CE Broker approval# for this course is: Live = 20-1081928, On-Demand = 20-1081930.

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  1. Describe at least one approach taken by a hemophilia treatment center to foster the independence of transition age patients.
  2. Discuss the key elements of how an adult HTC supports young adults who have transitioned to adult healthcare.
  3. Summarize how an HTC provides wraparound services.
Presenters:
  • Javey Dallas, MSW, LCSW, Social Worker, Jimmy Everest Center for Cancer and Blood Disorders in Children
  • Jenny Lamharzi, BSN, RN, Adult Bleeding Disorder Nurse Specialist, Washington Center for Bleeding Disorders
  • Joseph Stanco, NP, Family Nurse Practitioner, Hemostasis and Thrombosis Center, Cohen Children's Medical Center and LIJ Medical Center

Title: Strategies for Assessing and Tracking Transition Knowledge and Skills

Date & Time: June 12, 2023

 from 3:00 pm

 - 4:00 pm

 EST

Description:

Assessing and tracking transition knowledge and skills are key components of successful healthcare transition programs at hemophilia treatment centers (HTCs). During this webinar, attendees will learn about three different approaches to assessing transition knowledge and skills, starting with very young patients up to young adult patients. Julie Doyle, a nurse with Cincinnati Children’s Hospital Medical Center, will share her HTC’s knowledge assessment approach that starts as young as age 6. Jenny McDaniel, a pediatric hematologist with St. Jude Affiliate Clinic at Novant Health Hemby Children’s Hospital, will share her team’s approach to assessing transition knowledge with teens starting at age 14. Finally, Sam Cassisi, a Genetic Counselor with Michigan State University, will discuss a quality improvement project designed to assess and track transition knowledge across disciplines. Presenters will also discuss how they developed their approaches to assessing knowledge and skills, challenges along the way, how their strategies have evolved over time, and where their work may go in the future.

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in 41 states. There is no cost associated with this webinar.

If you are a Florida licensee, the CE Broker approval# for this course is: Live Version: 20-1066040, On-Demand Version: 20-1066036.

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  1. Describe three distinct approaches to assessing transition knowledge and skills.
  2. Compare and contrast strategies for assessing transition knowledge and skills.
  3. Identify specific examples of how hemophilia treatment centers address transition readiness at different ages.
Presenters:
  • Samantha L Cassisi, MS, LCGC, Genetic Counselor, Michigan State University
  • Julie Doyle, BSN, RN, Hemophilia Program Manager, Cincinnati Children’s Hospital Medical Center
  • Jenny McDaniel, MD, Pediatric Hematologist, St. Jude Affiliate Clinic at NH Hemby Children’s Hospital