Supporting high-quality comprehensive care
On a national scale, the NHPCC is working to:
- Strengthen the capacity of the regional hemophilia networks and the integrated care teams at HTCs across the country
- Improve access to comprehensive, quality care for underserved populations with hemophilia and related blood or clotting disorders
- Leverage quality improvement to track national, regional, and patient-level data to assess and improve clinical outcomes
- Train and support HTC staff with quality improvement and motivational interviewing tools and infrastructure to improve care and patient outcomes
The NHPCC has built an inclusive organizational structure to support the 8 regional hemophilia networks and serve the bleeding disorders community. Activities include:
- Developing in-person and virtual training programs and educational webinars
- Conducting surveys and assessments to increase understanding and inform best practices
- Collecting data and reporting to measure progress
- Evaluating and assessing programs and services
- Supporting HTC staff and Regional Leadership
- Hosting a Resource Repository that increases the evidence base on the benefits of comprehensive care
The NHPCC has built upon our collaborations with the regional hemophilia networks and other partners to align strategic efforts and improve access and care for people with hemophilia and related bleeding disorders. Through a variety of initiatives, together we’re making an impact.
Melissa Creary, PhD, MPH
Senior Director, Office of Public Health Initiatives
As Senior Director, Office of Public Health Initiatives, Melissa is responsible for supporting the NHPCC’s efforts in reaching programmatic goals and timelines. She helps facilitate partnership between the NHPCC and the regional hemophilia networks and supports the vision of these two collaborative entities. With a distinguished background in public health, Melissa spent nine years at the CDC Division of Blood Disorders where she helped create and co-lead the first national program and data collection system for sickle cell disease and thalassemia. In addition to her work at ATHN, she is also an Assistant Professor in the School of Public Health at the University of Michigan. She received her PhD in Interdisciplinary Studies and her MPH in Public Health from Emory University.
Grace Trinidad, PhD, MPH, MS
Director, National Hemophilia Program Coordinating Center
As the director for the National Hemophilia Program Coordinating Center, Grace is responsible for the direction and strategic coordination of the collaborative national infrastructure of regional hemophilia networks. She is trained as an implementation scientist and has many years of experience in community-based research—focusing on the ethical, legal, and social implications of privacy in healthcare. Grace received her PhD in Health Infrastructures and Learning Systems and has a MPH in Health Behaviors and Health Education from the University of Michigan.
Kate Colbath, MSW, MPH
Program Manager, National Hemophilia Program Coordinating Center
As Program Manager, Kate is responsible for the daily functioning of the NHPCC as it works to strengthen the regional hemophilia networks, engage other stakeholder groups, increase the evidence base in bleeding disorders care, support improved access to care, and address emerging issues of importance. Kate has worked in the bleeding disorders community for 10 years, with many spent as one of the first bleeding disorders quality improvement (QI) professionals in the U.S. She holds Master’s degrees in Public Health and Social Work, both from the University of Utah.