Supporting high-quality comprehensive care
On a national scale, the NHPCC is working to:
- Strengthen the capacity of the regional hemophilia networks and the integrated care teams at HTCs across the country
- Improve access to comprehensive, quality care for underserved populations with hemophilia and related blood or clotting disorders
- Leverage quality improvement to track national, regional, and patient-level data to assess and improve clinical outcomes
- Train and support HTC staff with quality improvement and motivational interviewing tools and infrastructure to improve care and patient outcomes
The NHPCC has built an inclusive organizational structure to support the 8 regional hemophilia networks and serve the bleeding disorders community. Activities include:
- Developing in-person and virtual training programs and educational webinars
- Conducting surveys and assessments to increase understanding and inform best practices
- Collecting data and reporting to measure progress
- Evaluating and assessing programs and services
- Supporting HTC staff and Regional Leadership
- Hosting a Resource Repository that increases the evidence base on the benefits of comprehensive care
The NHPCC has built upon our collaborations with the regional hemophilia networks and other partners to align strategic efforts and improve access and care for people with hemophilia and related bleeding disorders. Through a variety of initiatives, together we’re making an impact.
Melissa Creary, PhD, MPH
Interim Director, Office of Public Health Initiatives
As Interim Director, Office of Public Health Initiatives, Melissa is responsible for supporting the NHPCC’s efforts in reaching programmatic goals and timelines. She helps facilitate partnership between the NHPCC and the regional hemophilia networks and supports the vision of these two collaborative entities. With a distinguished background in public health, Melissa spent nine years at the CDC Division of Blood Disorders where she helped create and co-lead the first national program and data collection system for sickle cell disease and thalassemia. In addition to her work at ATHN, she is also an Assistant Professor in the School of Public Health at the University of Michigan. She received her PhD in Interdisciplinary Studies and her MPH in Public Health from Emory University.
Justine Kaplan, MSPH
Senior Director, Office of Public Health Initiatives
As Senior Director, Office of Public Health Initiatives, Justine is responsible for supporting ATHN’s efforts to coordinate federal programs, strengthen partnerships, implement health equity programming, and leverage ATHN’s capabilities to support medically underserved populations. Justine comes to the position with 20 years of experience working in public health, including public health practice work at the city, county, state, and national level, as well as experience training the next generation of public health practitioners as a faculty member. Most of her experience has focused on chronic disease prevention, management, and policy change, with a focus on health equity. She received her MSPH from the Harvard University T.H. Chan School of Public Health.