Supporting high-quality comprehensive care

Bleeding disorders affect people of all ages, races, and socioeconomic groups across the U.S. In 2012, the Maternal and Child Health Bureau (MCHB) in the Health Resources and Services Administration (HRSA) recognized the need to coordinate care for bleeding disorders on a national scale. The NHPCC was established to support a national infrastructure of regional hemophilia networks to promote access and high-quality, comprehensive care. It is funded by the HRSA grant #UC8MC24079 through the American Thrombosis and Hemostasis Network (ATHN), its sponsoring organization.

Mission Statement

The mission of the NHPCC is to coordinate the efforts of the U.S. Hemophilia Treatment Center Network (USHTCN) to promote and improve comprehensive care for individuals with hemophilia and related bleeding or clotting disorders. Consistent with the vision of HRSA, the NHPCC aims to support access to quality services, a strong public health workforce, and innovative, high-value programs.
  • Goals
  • Activities
  • Impact

On a national scale, the NHPCC is working to:

  • Strengthen the capacity of the regional hemophilia networks and the integrated care teams at HTCs across the country
  • Improve access to comprehensive, quality care for underserved populations with hemophilia and related blood or clotting disorders
  • Leverage quality improvement to track national, regional, and patient-level data to assess and improve clinical outcomes
  • Train and support HTC staff with quality improvement and motivational interviewing tools and infrastructure to improve care and patient outcomes

The NHPCC has built an inclusive organizational structure to support the 8 regional hemophilia networks and serve the bleeding disorders community. Activities include:

  • Developing in-person and virtual training programs and educational webinars
  • Conducting surveys and assessments to increase understanding and inform best practices
  • Collecting data and reporting to measure progress
  • Evaluating and assessing programs and services
  • Supporting HTC staff and Regional Leadership
  • Hosting a Resource Repository that increases the evidence base on the benefits of comprehensive care

The NHPCC has built upon our collaborations with the regional hemophilia networks and other partners to align strategic efforts and improve access and care for people with hemophilia and related bleeding disorders. Through a variety of initiatives, together we’re making an impact.

View our impact

Our Team

Melissa Creary

Melissa Creary, PhD, MPH

Senior Director, Office of Public Health Initiatives

mcreary@athn.org

As Senior Director, Office of Public Health Initiatives, Melissa is responsible for supporting the NHPCC’s efforts in reaching programmatic goals and timelines. She helps facilitate partnership between the NHPCC and the regional hemophilia networks and supports the vision of these two collaborative entities. With a distinguished background in public health, Melissa spent nine years at the CDC Division of Blood Disorders where she helped create and co-lead the first national program and data collection system for sickle cell disease and thalassemia. In addition to her work at ATHN, she is also an Assistant Professor in the School of Public Health at the University of Michigan. She received her PhD in Interdisciplinary Studies and her MPH in Public Health from Emory University.

Grace Trinidad

Grace Trinidad, PhD, MPH, MS

Director, National Hemophilia Program Coordinating Center

gtrinidad@athn.org

As the director for the National Hemophilia Program Coordinating Center, Grace is responsible for the direction and strategic coordination of the collaborative national infrastructure of regional hemophilia networks. She is trained as an implementation scientist and has many years of experience in community-based research—focusing on the ethical, legal, and social implications of privacy in healthcare. Grace received her PhD in Health Infrastructures and Learning Systems and has a MPH in Health Behaviors and Health Education from the University of Michigan.

Kate Colbath

Kate Colbath, MSW, MPH

Program Manager, National Hemophilia Program Coordinating Center

kcolbath@athn.org

As Program Manager, Kate is responsible for the daily functioning of the NHPCC as it works to strengthen the regional hemophilia networks, engage other stakeholder groups, increase the evidence base in bleeding disorders care, support improved access to care, and address emerging issues of importance. Kate has worked in the bleeding disorders community for 10 years, with many spent as one of the first bleeding disorders quality improvement (QI) professionals in the U.S. She holds Master’s degrees in Public Health and Social Work, both from the University of Utah.