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NHPCC Engage Webinars

As part of our commitment to supporting professionals in the field, the NHPCC is pleased to offer a series of webinars—both live and on-demand—to engage multidisciplinary staff of hemophilia treatment centers (HTCs) across the country.

The NHPCC webinar series is designed to:

  • Support the work of HTCs across a range of topics and issues, including quality improvement, transition of care, patient and family engagement, reaching underserved populations, and more
  • Highlight emerging, innovative, and best practices happening in HTCs
  • Provide an opportunity for peer-to-peer sharing across many HTC roles and disciplines
  • Engage HTC staff across the nation

NHPCC Engage Webinars are designed and produced for HTC staff.

Earn free Continuing Education Units (CEUs)

The NHPCC offers free continuing education units (CEUs) for participation in both live and recorded webinars.

Please check back here for upcoming webinar information. If you have any questions, please contact nhpcc@athn.org.

For HTC physical therapists wanting to claim credit for NHPCC webinars and trainings produced in 2023 and 2024, please complete this process by 12/31/24. As of 1/1/25, physical therapist CEUs will not be available. Due to changes in accreditation across a few states, NHPCC is exploring how to sustainably provide CEUs to HTC physical therapists. Stay tuned for more information, and please reach out to nhpcc@athn.org if you have any questions.

Title: Figuring out the “Flow” for Teens with Bleeding Disorders

Date & Time: July 25, 2025

 from 2:00 pm

 - 3:00 pm

 EST

Description:

This webinar is the first in a series of three session jointly hosted by the Foundation for Women and Girls with Blood Disorders (FWGBD) and the National Hemophilia Program Coordinating Center (NHPCC). The series will explore the ages and stages in working with girls and women with bleeding disorders: adolescence, reproductive years, and menopause years. We begin in July with a focus on adolescence.

This first session will feature presenters Dr. Asha Davidson, Registered Nurse Tate Denison, and Dr. Neethu Menon, all from the Gulf States Hemophilia and Thrombophilia Center’s Young Women with Bleeding Disorders Clinic (YWBD) in Houston, Texas. The American College of Obstetricians and Gynecologists (ACOG) Committee Opinion Number 785 notes that 75-80% of girls and women with an inherited bleeding disorder report heavy menses as the most commonly mentioned symptom of their disorder, underscoring the importance of this topic. For this webinar, presenters will describe their interdisciplinary approach to management of heavy menstrual bleeding in adolescent patients, treatment of iron deficiency, and evaluation and treatment of underlying bleeding disorders. They will describe the benefits of having an adolescent medicine specialist in this clinic, which helps expand their ability to address psychosocial needs (eating disorders, anxiety, depression) along with obesity and nutrition issues, and reproductive health. Speakers will also share operational information about the flow of the clinic, the role of the nurse within the multidisciplinary team, the variety of communication tools the team employs, and tips on overcoming obstacles that could come up in the management of bleeding disorders in young women.

This webinar is free and open to all disciplines working within a bleeding and clotting clinic/center. CEUs are available for MDs, nurses, nurse practitioners, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners), ATHN, and the FWGBD. Please join us!

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  1. Identify challenges frequently encountered in the management of bleeding disorders in young women in a multidisciplinary clinic setting.
  2. Discuss strategies to overcome these clinical and workflow challenges.
  3. Explain the strengths of each member within the multidisciplinary team and the overall impact of this care model.
Presenters:

All presenters are from Gulf States Hemophilia and Thrombophilia Center:

  • Asha Davidson, MD, MPH, Adolescent Medicine Specialist
  • Tate Denison, RN, BSN, Nurse Coordinator
  • Neethu Menon, MD, Pediatric Hematologist

 

Title: Bones Matter: Tips for HTC Staff in Supporting Patients’ Bone Health

Date & Time: June 17, 2025

 from 3:30 pm

 - 4:30 pm

 EST

Description:

This webinar will focus on the importance of bone health for individuals living with bleeding disorders. Our three presenters will discuss different aspects of supporting patients to build and maintain good bone health. Dr. Divya Citla, pediatric hematologist/oncologist with the Arkansas Center for Bleeding Disorders, will provide a brief overview of bone physiology and discuss how bone health is impacted in people with bleeding disorders. Dr. Citla will then share findings from her recently published study focused on bone health screening at HTCs across the United States. Physical Therapists Lora Joyner, of the East Carolina University HTC, and Nikki Clark, formerly with the University of Colorado Hemophilia and Thrombosis Center and currently an instructor in the Physical Therapy Program at the University of Colorado, will discuss bone health from the physical therapy perspective. They will provide an introduction to MASAC Document 291 – Physical Therapy Management for Bone Health in People with Bleeding Disorders, and discuss tips for healthcare providers on implementing bone health assessments and other interventions in the HTC to support patients. Finally, presenters will discuss how other disciplines within the HTC (nursing, social work) also play an important role in screening for and promoting good bone health by supporting patients to engage in physical activity and facilitating DEXA scans. This webinar is free and open to all HTC disciplines. Free CEUs are available. Please join us!

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  1. Discuss the importance of building and maintaining good bone health for individuals living with bleeding disorders.
  2. Identify the key components of MASAC Document 291 - Physical Therapy Management for Bone Health in People with Bleeding Disorders.
  3. Articulate the range of roles that HTC staff can play in supporting patients’ bone health.
Presenters:
  • Divya Citla, MD, Pediatric Hematologist/Oncologist, Arkansas Center for Bleeding Disorders
  • Nikki Clark, PT, DPT, Physical Therapy Program Instructor, University of Colorado
  • Lora Joyner, MS, PT, PCS, East Carolina University Health Hemophilia Treatment Center

Title: Using Quality Improvement to Advance Healthcare Transition in the HTC Setting

Date & Time: May 7, 2025

 from 3:30 pm

 - 4:30 pm

 EST

Description:

This webinar will highlight three recently completed HTC quality improvement (QI) projects focused on healthcare transition. Emily Valentino, Hemophilia Nursing Coordinator with the Bronson Hemophilia Treatment Center, will provide an overview of her HTC’s process of establishing a transition policy within the context of a larger institution, including the process of working with institution-wide policy staff and communicating the policy to patients and families. Zahara Jones, Clinical Research Coordinator with the UCSF Benioff Children's Hospitals Oakland & San Francisco, will discuss her team’s efforts to create and improve a transition readiness assessment through Plan-Do-Study-Act cycles, building on staff and patient feedback to create a clear and useful assessment that will help to inform other aspects of the HTC’s transition approach. Lisa Cohen, Program Manager with the New Jersey Regional Hemophilia Program, will share about her HTC’s QI project focused on tracking and monitoring the delivery of the transition readiness assessment to transition-age patients, along with how the HTC team is iteratively refining the delivery of the transition readiness assessment to patient and the tracking of results.  Presenters will discuss the planning and implementation of their QI projects, challenges and successes, lessons learned, the benefits of the project for patents and/or HTC staff, and where they plan to take their QI efforts next.  This webinar is free and open to all HTC disciplines. Free CEUs are available. Please join us!

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  1. Discuss specific steps that HTC staff took to plan and implement QI projects focused on healthcare transition.
  2. Identify the quality improvement tools that HTCs used in the implementation of their health care transition QI projects.
  3. Articulate the benefits for patient care and/or HTC staff of the QI projects that the three HTCs carried out.
Presenters:
  • Emily Valentino, Hemophilia Nursing Coordinator, Bronson Hemophilia Treatment Center
  • Zahara Jones, Clinical Research Coordinator, UCSF Benioff Children's Hospitals Oakland & San Francisco
  • Lisa Cohen, Program Manager, New Jersey Regional Hemophilia Program, Rutgers Robert Wood Johnson Medical School

Title: Supporting Aging Patients with Bleeding Disorders

Date & Time: January 15, 2025

 from 2:30 pm

 - 3:30 pm

 EST

Description:

This webinar will focus on what one HTC is learning about working with aging patients. Presenters from Versiti’s Comprehensive Center for Bleeding Disorders, in Milwaukee, WI, will share a case study that highlights how the HTC supported the aging patient living with hemophilia, as well as staff reflections on this work. Presenters will share how they approached this specific case from their own disciplines, and their lessons learned to inform future work with aging patients. Presenters will touch on identifying older adults at higher risk for falls, managing comorbidities, addressing transportation issues and living arrangements, navigating family support or lack thereof, and more. Speakers will highlight each discipline’s role in creating a realistic plan for each patient. This webinar is free and open to all HTC disciplines. Free CEUs are available. Please join us!

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  1. Discuss specific steps that HTC staff took to support an aging patient with a bleeding disorder.
  2. Identify how multidisciplinary HTC team members play a role in supporting the physical, social, and emotional health of aging patients with bleeding disorders.
  3. Articulate the importance and relevance of supporting aging patients in the multi-disciplinary HTC context.
Presenters:

Versiti’s Comprehensive Center for Bleeding Disorders Speakers:

  • Angelica Chironis, MSN, RN, APNP, CPNP-AC, Outreach & Home Care Coordinator
  • Traci Knebes, MSW, APSW, Social Worker
  • Becky Kohl, DPT, Physical Therapist
  • Lynn Malec, MD, Hematologist
  • Sheri Robbins, MSW, LCSW, Social Worker/Financial Counselor

 

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