NHPCC Engage Webinars

This webinar is the second in a series of three that explores the ages and stages in working with girls and women with bleeding disorders. This session will focus on the reproductive years, with an emphasis on pregnancy. This series is co-planned and produced by the Foundation for Women and Girls with Blood Disorders (FWGBD) and the National Hemophilia Program Coordinating Center (NHPCC).

Dr. Callie Berkowitz, Nurse Consultant Elise Leventry, and Physical Therapist Jennifer Newman, from the UNC Hemophilia Treatment Center (HTC) at the University of North Carolina at Chapel Hill, will share their interdisciplinary approach to supporting women before, during, and after pregnancy. Presenters will highlight the importance of coordinated care during reproductive years within the HTC, centering their discussion around key considerations for pre-conception, pregnancy, and the postpartum period. They will describe: their approach to preconception counseling and other aspects of patient education; overall coordination of care and collaboration with obstetrics to develop a safe and comprehensive birth plan; and options for managing bleeding during reproductive years. Speakers will share how the HTC physical therapist can support the patient during and after pregnancy, including assessing the need for pelvic floor physical therapy. Presenters will also touch on outreach to women not currently seeking care at the HTC who could benefit from further discussion of managing their bleeding disorder in the context of pregnancy or future pregnancy.

This session is open to all disciplines working within the HTC context. Free CEUs are available for nurses, nurse practitioners, physicians, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners), FWGBD, and ATHN. Please join us!

NHPCC webinars are designed and produced for HTC staff. Please contact nhpcc@athn.org with any questions.

People with bleeding disorders over the age of 50 may have been exposed to a contaminated blood supply, resulting in HIV infections and/or Hepatitis diagnoses. Aging adults face a myriad of challenges; however, adults aging with hemophilia – and potentially with concurrent HIV - navigate a unique set of circumstances. In this webinar, speakers Tam Perry (Wayne State University), Sara Schwartz (University of Southern California), and Ellen Kachalsky (Social Worker, Henry Ford HTC) will share collective learning to inform work with individuals aging with a bleeding disorder. Tam Perry and Sara Schwartz will bring their perspectives as social workers and academics, and will relate lessons from their qualitative interviews with over 30 individuals aging with bleeding disorders. Ellen Kachalsky will draw on her work with aging populations as a Social Worker at Henry Ford Hospital HTC. This session will introduce some of the many physical and emotional challenges this population has historically managed and continues to face while also celebrating the triumphs and unexpected gifts of age. Presenters will highlight implications of these interviews for HTC staff and clinicians as they move into a new era of caring for more aging patients with bleeding disorders. This session is for all disciplines working within the HTC context. Please join us!

Free CEUs are available for physicians, nurses, nurse practitioners, physician assistants, and social workers. Others may obtain a certificate to petition for credit with their board. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners) and ATHN.

This webinar is focused on sharing practical information to overcome challenges related to insurance in the HTC setting. Presenters will share how their HTC teams support patients in making insurance decisions, as well as their strategies for navigating insurance processes – such as prior authorizations and denials – among HTC team members.

Becky Burns, Chief Operating Officer of the Bleeding and Clotting Disorders Institute, located in Peoria, IL, will share information on supporting patients in the selection of insurance plans. She will highlight key considerations for patients with bleeding disorders, ways that HTC staff can support patients in making insurance decisions, and areas of caution when selecting an insurance plan. Shanna Mattis, Social Worker with the Hemophilia of Georgia Center for Bleeding & Clotting Disorders of Emory, will demonstrate how her HTC troubleshoots when a patient doesn’t have access to medications based on their insurance coverage. Erin Kavanagh, Executive Director of the Louisiana Center for Bleeding and Clotting Disorders, will discuss how her HTC manages expectations around insurance with patients, how the HTC team collaborates across disciplines and departments to navigate insurance approvals and denials, and the role the HTC team plays in calmly reassuring patients about insurance. Finally, My Nguyen, Pharmacist and PA with the University of South Florida HTC, will describe key elements in insurance prior authorizations and the strategies and tools his team uses to avoid and respond to denials.

This webinar is free and open to all disciplines working in an HTC. CEUs are available for physicians, nurses, nurse practitioners, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners) and ATHN. Please join us!

This webinar is the first in a series of three session jointly hosted by the Foundation for Women and Girls with Blood Disorders (FWGBD) and the National Hemophilia Program Coordinating Center (NHPCC). The series will explore the ages and stages in working with girls and women with bleeding disorders: adolescence, reproductive years, and menopause years. We begin in July with a focus on adolescence.

This first session will feature presenters Dr. Asha Davidson, Registered Nurse Tate Denison, and Dr. Neethu Menon, all from the Gulf States Hemophilia and Thrombophilia Center’s Young Women with Bleeding Disorders Clinic (YWBD) in Houston, Texas. The American College of Obstetricians and Gynecologists (ACOG) Committee Opinion Number 785 notes that 75-80% of girls and women with an inherited bleeding disorder report heavy menses as the most commonly mentioned symptom of their disorder, underscoring the importance of this topic. For this webinar, presenters will describe their interdisciplinary approach to management of heavy menstrual bleeding in adolescent patients, treatment of iron deficiency, and evaluation and treatment of underlying bleeding disorders. They will describe the benefits of having an adolescent medicine specialist in this clinic, which helps expand their ability to address psychosocial needs (eating disorders, anxiety, depression) along with obesity and nutrition issues, and reproductive health. Speakers will also share operational information about the flow of the clinic, the role of the nurse within the multidisciplinary team, the variety of communication tools the team employs, and tips on overcoming obstacles that could come up in the management of bleeding disorders in young women.

This webinar is free and open to all disciplines working within a bleeding and clotting clinic/center. CEUs are available for MDs, nurses, nurse practitioners, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners), ATHN, and the FWGBD. Please join us!