NHPCC Engage Webinars

Join us for the final session in the Ages and Stages webinar series, co-hosted by the Foundation for Women and Girls with Blood Disorders (FWGBD) and the National Hemophilia Program Coordinating Center (NHPCC).

This session focuses on women and aging, featuring an inter- and multidisciplinary team from the Hemophilia Center of Western Pennsylvania: Hematologist Nicoletta Machin, Physician Assistant Ashley Long, and Social Worker Kathaleen Schnur. Together, they will discuss the physiologic and hematologic changes women face as they age, including during menopause and the surrounding years. Presenters will discuss age-related comorbidities and how these health issues tie in with the management of bleeding disorders and will highlight best practices for coordinated care. Presenters will also apply patient cases to demonstrate coordinated care approaches and insights from hematology, women’s health, and psychosocial care, offering practical strategies for supporting women during this life stage.

This session is open to all disciplines working within a bleeding/clotting center. Free CEUs are available for nurses, nurse practitioners, physicians, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners), FWGBD, and ATHN. Please join us!

This webinar is the second in a series of three that explores the ages and stages in working with girls and women with bleeding disorders. This session will focus on the reproductive years, with an emphasis on pregnancy. This series is co-planned and produced by the Foundation for Women and Girls with Blood Disorders (FWGBD) and the National Hemophilia Program Coordinating Center (NHPCC).

Dr. Callie Berkowitz, Nurse Consultant Elise Leventry, and Physical Therapist Jennifer Newman, from the UNC Hemophilia Treatment Center (HTC) at the University of North Carolina at Chapel Hill, will share their interdisciplinary approach to supporting women before, during, and after pregnancy. Presenters will highlight the importance of coordinated care during reproductive years within the HTC, centering their discussion around key considerations for pre-conception, pregnancy, and the postpartum period. They will describe: their approach to preconception counseling and other aspects of patient education; overall coordination of care and collaboration with obstetrics to develop a safe and comprehensive birth plan; and options for managing bleeding during reproductive years. Speakers will share how the HTC physical therapist can support the patient during and after pregnancy, including assessing the need for pelvic floor physical therapy. Presenters will also touch on outreach to women not currently seeking care at the HTC who could benefit from further discussion of managing their bleeding disorder in the context of pregnancy or future pregnancy.

This session is open to all disciplines working within the HTC context. Free CEUs are available for nurses, nurse practitioners, physicians, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners), FWGBD, and ATHN. Please join us!

NHPCC webinars are designed and produced for HTC staff. Please contact nhpcc@athn.org with any questions.

People with bleeding disorders over the age of 50 may have been exposed to a contaminated blood supply, resulting in HIV infections and/or Hepatitis diagnoses. Aging adults face a myriad of challenges; however, adults aging with hemophilia – and potentially with concurrent HIV - navigate a unique set of circumstances. In this webinar, speakers Tam Perry (Wayne State University), Sara Schwartz (University of Southern California), and Ellen Kachalsky (Social Worker, Henry Ford HTC) will share collective learning to inform work with individuals aging with a bleeding disorder. Tam Perry and Sara Schwartz will bring their perspectives as social workers and academics, and will relate lessons from their qualitative interviews with over 30 individuals aging with bleeding disorders. Ellen Kachalsky will draw on her work with aging populations as a Social Worker at Henry Ford Hospital HTC. This session will introduce some of the many physical and emotional challenges this population has historically managed and continues to face while also celebrating the triumphs and unexpected gifts of age. Presenters will highlight implications of these interviews for HTC staff and clinicians as they move into a new era of caring for more aging patients with bleeding disorders. This session is for all disciplines working within the HTC context. Please join us!

Free CEUs are available for physicians, nurses, nurse practitioners, physician assistants, and social workers. Others may obtain a certificate to petition for credit with their board. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners) and ATHN.