NHPCC Engage Webinars

This webinar is the first in a series of three session jointly hosted by the Foundation for Women and Girls with Blood Disorders (FWGBD) and the National Hemophilia Program Coordinating Center (NHPCC). The series will explore the ages and stages in working with girls and women with bleeding disorders: adolescence, reproductive years, and menopause years. We begin in July with a focus on adolescence.

This first session will feature presenters Dr. Asha Davidson, Registered Nurse Tate Denison, and Dr. Neethu Menon, all from the Gulf States Hemophilia and Thrombophilia Center’s Young Women with Bleeding Disorders Clinic (YWBD) in Houston, Texas. The American College of Obstetricians and Gynecologists (ACOG) Committee Opinion Number 785 notes that 75-80% of girls and women with an inherited bleeding disorder report heavy menses as the most commonly mentioned symptom of their disorder, underscoring the importance of this topic. For this webinar, presenters will describe their interdisciplinary approach to management of heavy menstrual bleeding in adolescent patients, treatment of iron deficiency, and evaluation and treatment of underlying bleeding disorders. They will describe the benefits of having an adolescent medicine specialist in this clinic, which helps expand their ability to address psychosocial needs (eating disorders, anxiety, depression) along with obesity and nutrition issues, and reproductive health. Speakers will also share operational information about the flow of the clinic, the role of the nurse within the multidisciplinary team, the variety of communication tools the team employs, and tips on overcoming obstacles that could come up in the management of bleeding disorders in young women.

This webinar is free and open to all disciplines working within a bleeding and clotting clinic/center. CEUs are available for MDs, nurses, nurse practitioners, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners), ATHN, and the FWGBD. Please join us!

This webinar will focus on the importance of bone health for individuals living with bleeding disorders. Our three presenters will discuss different aspects of supporting patients to build and maintain good bone health. Dr. Divya Citla, pediatric hematologist/oncologist with the Arkansas Center for Bleeding Disorders, will provide a brief overview of bone physiology and discuss how bone health is impacted in people with bleeding disorders. Dr. Citla will then share findings from her recently published study focused on bone health screening at HTCs across the United States. Physical Therapists Lora Joyner, of the East Carolina University HTC, and Nikki Clark, formerly with the University of Colorado Hemophilia and Thrombosis Center and currently an instructor in the Physical Therapy Program at the University of Colorado, will discuss bone health from the physical therapy perspective. They will provide an introduction to MASAC Document 291 – Physical Therapy Management for Bone Health in People with Bleeding Disorders, and discuss tips for healthcare providers on implementing bone health assessments and other interventions in the HTC to support patients. Finally, presenters will discuss how other disciplines within the HTC (nursing, social work) also play an important role in screening for and promoting good bone health by supporting patients to engage in physical activity and facilitating DEXA scans. This webinar is free and open to all HTC disciplines. Free CEUs are available. Please join us!

This webinar will highlight three recently completed HTC quality improvement (QI) projects focused on healthcare transition. Emily Valentino, Hemophilia Nursing Coordinator with the Bronson Hemophilia Treatment Center, will provide an overview of her HTC’s process of establishing a transition policy within the context of a larger institution, including the process of working with institution-wide policy staff and communicating the policy to patients and families. Zahara Jones, Clinical Research Coordinator with the UCSF Benioff Children's Hospitals Oakland & San Francisco, will discuss her team’s efforts to create and improve a transition readiness assessment through Plan-Do-Study-Act cycles, building on staff and patient feedback to create a clear and useful assessment that will help to inform other aspects of the HTC’s transition approach. Lisa Cohen, Program Manager with the New Jersey Regional Hemophilia Program, will share about her HTC’s QI project focused on tracking and monitoring the delivery of the transition readiness assessment to transition-age patients, along with how the HTC team is iteratively refining the delivery of the transition readiness assessment to patient and the tracking of results.  Presenters will discuss the planning and implementation of their QI projects, challenges and successes, lessons learned, the benefits of the project for patents and/or HTC staff, and where they plan to take their QI efforts next.  This webinar is free and open to all HTC disciplines. Free CEUs are available. Please join us!

This webinar will focus on what one HTC is learning about working with aging patients. Presenters from Versiti’s Comprehensive Center for Bleeding Disorders, in Milwaukee, WI, will share a case study that highlights how the HTC supported the aging patient living with hemophilia, as well as staff reflections on this work. Presenters will share how they approached this specific case from their own disciplines, and their lessons learned to inform future work with aging patients. Presenters will touch on identifying older adults at higher risk for falls, managing comorbidities, addressing transportation issues and living arrangements, navigating family support or lack thereof, and more. Speakers will highlight each discipline’s role in creating a realistic plan for each patient. This webinar is free and open to all HTC disciplines. Free CEUs are available. Please join us!