NHPCC Engage Webinars
As part of our commitment to supporting professionals in the field, the NHPCC is pleased to offer a series of webinars—both live and on-demand—to engage multidisciplinary staff of hemophilia treatment centers (HTCs) across the country.
The NHPCC webinar series is designed to:
- Support the work of HTCs across a range of topics and issues, including quality improvement, transition of care, patient and family engagement, reaching underserved populations, and more
- Highlight emerging, innovative, and best practices happening in HTCs
- Provide an opportunity for peer-to-peer sharing across many HTC roles and disciplines
- Engage HTC staff across the nation
NHPCC Engage Webinars are designed and produced for HTC staff.
Earn free Continuing Education Units (CEUs)
The NHPCC offers free continuing education units (CEUs) for participation in both live and recorded webinars.
Please check back here for upcoming webinar information. If you have any questions, please contact nhpcc@athn.org.
For HTC physical therapists wanting to claim credit for NHPCC webinars and trainings produced in 2023 and 2024, please complete this process by 12/31/24. As of 1/1/25, physical therapist CEUs will not be available. Due to changes in accreditation across a few states, NHPCC is exploring how to sustainably provide CEUs to HTC physical therapists. Stay tuned for more information, and please reach out to nhpcc@athn.org if you have any questions.
- Upcoming Webinars
- Past Webinars
Title: Bones Matter: Tips for HTC Staff in Supporting Patients’ Bone Health
Date & Time: June 17, 2025
from 3:30 pm
- 4:30 pm
EST
This webinar will focus on the importance of bone health for individuals living with bleeding disorders. Our three presenters will discuss different aspects of supporting patients to build and maintain good bone health. Dr. Divya Citla, pediatric hematologist/oncologist with the Arkansas Center for Bleeding Disorders, will provide a brief overview of bone physiology and discuss how bone health is impacted in people with bleeding disorders. Dr. Citla will then share findings from her recently published study focused on bone health screening at HTCs across the United States. Physical Therapists Lora Joyner, of the East Carolina University HTC, and Nikki Clark, formerly with the University of Colorado Hemophilia and Thrombosis Center and currently an instructor in the Physical Therapy Program at the University of Colorado, will discuss bone health from the physical therapy perspective. They will provide an introduction to MASAC Document 291 – Physical Therapy Management for Bone Health in People with Bleeding Disorders, and discuss tips for healthcare providers on implementing bone health assessments and other interventions in the HTC to support patients. Finally, presenters will discuss how other disciplines within the HTC (nursing, social work) also play an important role in screening for and promoting good bone health by supporting patients to engage in physical activity and facilitating DEXA scans. This webinar is free and open to all HTC disciplines. Free CEUs are available. Please join us!
At the conclusion of this webinar, participants will be able to:
- Discuss the importance of building and maintaining good bone health for individuals living with bleeding disorders.
- Identify the key components of MASAC Document 291 - Physical Therapy Management for Bone Health in People with Bleeding Disorders.
- Articulate the range of roles that HTC staff can play in supporting patients’ bone health.
- Divya Citla, MD, Pediatric Hematologist/Oncologist, Arkansas Center for Bleeding Disorders
- Nikki Clark, PT, DPT, Physical Therapy Program Instructor, University of Colorado
- Lora Joyner, MS, PT, PCS, East Carolina University Health Hemophilia Treatment Center
Title: Using Quality Improvement to Advance Healthcare Transition in the HTC Setting
Date & Time: May 7, 2025
from 3:30 pm
- 4:30 pm
EST
This webinar will highlight three recently completed HTC quality improvement (QI) projects focused on healthcare transition. Emily Valentino, Hemophilia Nursing Coordinator with the Bronson Hemophilia Treatment Center, will provide an overview of her HTC’s process of establishing a transition policy within the context of a larger institution, including the process of working with institution-wide policy staff and communicating the policy to patients and families. Zahara Jones, Clinical Research Coordinator with the UCSF Benioff Children's Hospitals Oakland & San Francisco, will discuss her team’s efforts to create and improve a transition readiness assessment through Plan-Do-Study-Act cycles, building on staff and patient feedback to create a clear and useful assessment that will help to inform other aspects of the HTC’s transition approach. Lisa Cohen, Program Manager with the New Jersey Regional Hemophilia Program, will share about her HTC’s QI project focused on tracking and monitoring the delivery of the transition readiness assessment to transition-age patients, along with how the HTC team is iteratively refining the delivery of the transition readiness assessment to patient and the tracking of results. Presenters will discuss the planning and implementation of their QI projects, challenges and successes, lessons learned, the benefits of the project for patents and/or HTC staff, and where they plan to take their QI efforts next. This webinar is free and open to all HTC disciplines. Free CEUs are available. Please join us!
At the conclusion of this webinar, participants will be able to:
- Discuss specific steps that HTC staff took to plan and implement QI projects focused on healthcare transition.
- Identify the quality improvement tools that HTCs used in the implementation of their health care transition QI projects.
- Articulate the benefits for patient care and/or HTC staff of the QI projects that the three HTCs carried out.
- Emily Valentino, Hemophilia Nursing Coordinator, Bronson Hemophilia Treatment Center
- Zahara Jones, Clinical Research Coordinator, UCSF Benioff Children's Hospitals Oakland & San Francisco
- Lisa Cohen, Program Manager, New Jersey Regional Hemophilia Program, Rutgers Robert Wood Johnson Medical School
Title: Supporting Aging Patients with Bleeding Disorders
Date & Time: January 15, 2025
from 2:30 pm
- 3:30 pm
EST
This webinar will focus on what one HTC is learning about working with aging patients. Presenters from Versiti’s Comprehensive Center for Bleeding Disorders, in Milwaukee, WI, will share a case study that highlights how the HTC supported the aging patient living with hemophilia, as well as staff reflections on this work. Presenters will share how they approached this specific case from their own disciplines, and their lessons learned to inform future work with aging patients. Presenters will touch on identifying older adults at higher risk for falls, managing comorbidities, addressing transportation issues and living arrangements, navigating family support or lack thereof, and more. Speakers will highlight each discipline’s role in creating a realistic plan for each patient. This webinar is free and open to all HTC disciplines. Free CEUs are available. Please join us!
At the conclusion of this webinar, participants will be able to:
- Discuss specific steps that HTC staff took to support an aging patient with a bleeding disorder.
- Identify how multidisciplinary HTC team members play a role in supporting the physical, social, and emotional health of aging patients with bleeding disorders.
- Articulate the importance and relevance of supporting aging patients in the multi-disciplinary HTC context.
Versiti’s Comprehensive Center for Bleeding Disorders Speakers:
- Angelica Chironis, MSN, RN, APNP, CPNP-AC, Outreach & Home Care Coordinator
- Traci Knebes, MSW, APSW, Social Worker
- Becky Kohl, DPT, Physical Therapist
- Lynn Malec, MD, Hematologist
- Sheri Robbins, MSW, LCSW, Social Worker/Financial Counselor
Title: Culturally Informed Care for Amish Communities
Date & Time: November 1, 2024
from 12:30 pm
- 1:30 pm
EST
This webinar will focus on reaching Amish communities, a geographically dispersed and underserved population residing in large swaths of the US. Amish people are known for living simply with minimal to no use of modern technology. In addition, many Amish communities do not routinely use standard medical or medical insurance. Because of their geographic isolation and large families, inherited bleeding disorders are more concentrated in affected Amish communities. On this webinar, Irene Boehlefeld, with the Hemostasis and Thrombosis Center at Akron Children's Hospital, Jen Maahs, with the Indiana Hemophilia and Thrombosis Center, and Kathaleen Schnur, with the Hemophilia Center of Western Pennsylvania, will discuss their work with Amish communities. Speakers will touch on how their HTCs interact with Amish patients and families, how their HTCs approach care and build relationships and trust, and how their HTCs interact with other systems (such as local hospitals) to support Amish patients. To provide real-world examples, speakers will also incorporate a patient case throughout the presentations. This webinar is relevant to any HTC actively working with Amish communities, as well as to HTCs seeking to reach any underserved population with the aim of establishing mutual respect and trusting relationships. This webinar is free and open to all disciplines. Free CEUs are available. Please join us!
This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN. There is no cost associated with this webinar.
At the conclusion of this webinar, participants will be able to:
- Discuss foundational aspects of each HTC’s approach to working with Amish communities.
- Articulate the cultural considerations that HTCs take into account when working with Amish communities.
- Identify how each presenter’s approach to reaching Amish Communities could be applied to the learner’s own context and strategy in reaching an underserved population.
- Irene Boehlefeld, BSN, RN-BC, CPHON, Hemostasis and Thrombosis Center, Akron Children's Hospital
- Jen Maahs, MSN, PNP, RN-BC, Indiana Hemophilia and Thrombosis Center
- Kathaleen Schnur, LCSW, Hemophilia Center of Western Pennsylvania