NHPCC Engage Webinars
As part of our commitment to supporting professionals in the field, the NHPCC is pleased to offer a series of webinars—both live and on-demand—to engage multidisciplinary staff of hemophilia treatment centers (HTCs) across the country.
The NHPCC webinar series is designed to:
- Support the work of HTCs across a range of topics and issues, including quality improvement, transition of care, patient and family engagement, reaching underserved populations, and more
- Highlight emerging, innovative, and best practices happening in HTCs
- Provide an opportunity for peer-to-peer sharing across many HTC roles and disciplines
- Engage HTC staff across the nation
NHPCC Engage Webinars are designed and produced for HTC staff.
Earn free Continuing Education Units (CEUs)
The NHPCC offers free continuing education units (CEUs) for participation in both live and recorded webinars.
Please check back here for upcoming webinar information. If you have any questions, please contact nhpcc@athn.org.
For HTC physical therapists wanting to claim credit for NHPCC webinars and trainings produced in 2023 and 2024, please complete this process by 12/31/24. As of 1/1/25, physical therapist CEUs will not be available. Due to changes in accreditation across a few states, NHPCC is exploring how to sustainably provide CEUs to HTC physical therapists. Stay tuned for more information, and please reach out to nhpcc@athn.org if you have any questions.
Title: Supporting Aging Patients with Bleeding Disorders
Date & Time: January 15, 2025
from 2:30 pm
- 3:30 pm
EST
This webinar will focus on what one HTC is learning about working with aging patients. Presenters from Versiti’s Comprehensive Center for Bleeding Disorders, in Milwaukee, WI, will share a case study that highlights how the HTC supported the aging patient living with hemophilia, as well as staff reflections on this work. Presenters will share how they approached this specific case from their own disciplines, and their lessons learned to inform future work with aging patients. Presenters will touch on identifying older adults at higher risk for falls, managing comorbidities, addressing transportation issues and living arrangements, navigating family support or lack thereof, and more. Speakers will highlight each discipline’s role in creating a realistic plan for each patient. This webinar is free and open to all HTC disciplines. Free CEUs are available. Please join us!
At the conclusion of this webinar, participants will be able to:
- Discuss specific steps that HTC staff took to support an aging patient with a bleeding disorder.
- Identify how multidisciplinary HTC team members play a role in supporting the physical, social, and emotional health of aging patients with bleeding disorders.
- Articulate the importance and relevance of supporting aging patients in the multi-disciplinary HTC context.
Versiti’s Comprehensive Center for Bleeding Disorders Speakers:
- Angelica Chironis, MSN, RN, APNP, CPNP-AC, Outreach & Home Care Coordinator
- Traci Knebes, MSW, APSW, Social Worker
- Becky Kohl, DPT, Physical Therapist
- Lynn Malec, MD, Hematologist
- Sheri Robbins, MSW, LCSW, Social Worker/Financial Counselor
Title: Culturally Informed Care for Amish Communities
Date & Time: November 1, 2024
from 12:30 pm
- 1:30 pm
EST
This webinar will focus on reaching Amish communities, a geographically dispersed and underserved population residing in large swaths of the US. Amish people are known for living simply with minimal to no use of modern technology. In addition, many Amish communities do not routinely use standard medical or medical insurance. Because of their geographic isolation and large families, inherited bleeding disorders are more concentrated in affected Amish communities. On this webinar, Irene Boehlefeld, with the Hemostasis and Thrombosis Center at Akron Children's Hospital, Jen Maahs, with the Indiana Hemophilia and Thrombosis Center, and Kathaleen Schnur, with the Hemophilia Center of Western Pennsylvania, will discuss their work with Amish communities. Speakers will touch on how their HTCs interact with Amish patients and families, how their HTCs approach care and build relationships and trust, and how their HTCs interact with other systems (such as local hospitals) to support Amish patients. To provide real-world examples, speakers will also incorporate a patient case throughout the presentations. This webinar is relevant to any HTC actively working with Amish communities, as well as to HTCs seeking to reach any underserved population with the aim of establishing mutual respect and trusting relationships. This webinar is free and open to all disciplines. Free CEUs are available. Please join us!
This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN. There is no cost associated with this webinar.
At the conclusion of this webinar, participants will be able to:
- Discuss foundational aspects of each HTC’s approach to working with Amish communities.
- Articulate the cultural considerations that HTCs take into account when working with Amish communities.
- Identify how each presenter’s approach to reaching Amish Communities could be applied to the learner’s own context and strategy in reaching an underserved population.
- Irene Boehlefeld, BSN, RN-BC, CPHON, Hemostasis and Thrombosis Center, Akron Children's Hospital
- Jen Maahs, MSN, PNP, RN-BC, Indiana Hemophilia and Thrombosis Center
- Kathaleen Schnur, LCSW, Hemophilia Center of Western Pennsylvania
Title: Improving Patient Access to Care In and Out of Clinic
Date & Time: October 7, 2024
from 3:30 pm
- 4:30 pm
EST
During this webinar, three speakers will share how their HTCs are increasing patient access to care both during and outside of regular clinic appointments. Rebecca Babkiewicz will discuss Hemophilia of Georgia’s (HoG) approach to establishing outreach clinics that take care of patients using a mix of in-person care and telehealth. She will discuss how this approach has increased HoG’s ability to reach patients in certain geographic areas, including those lost to follow up due to transportation barriers. Tami Bullock, of University of Iowa Health Care, will provide an overview of her HTC’s community nurse program, and how it’s been designed to complement in-person care at the HTC and support patients in successfully caring for their bleeding disorders at home. Finally, Nicole Reynaud, of the Louisiana Center for Bleeding and Clotting Disorders, will discuss her HTC’s approach to providing nursing phone coverage 24/7 through a rotating nursing schedule and can provide in home infusion services through Acadian Health after hours to prevent unnecessary trips to ER. Each speaker will discuss how their HTC decided to implement that specific approach and share practical implementation tips, lessons learned, and future plans. This webinar is free and open to all disciplines. Free CEUs are provided. Please join us!
This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN. There is no cost associated with this webinar.
At the conclusion of this webinar, participants will be able to:
- Identify three distinct approaches to increasing patient access to bleeding disorders care.
- Describe challenges and successes with each of the models shared for increasing patient access to care.
- Discuss how these three models for increasing patient access to bleeding disorders care could be tailored for use in your own HTC.
- Rebecca Babkiewicz, MSN, RN, CPN, Director of Telehealth, Hemophilia of Georgia
- Tami Bullock, RN-BC, BSN, Hemophilia and Thrombosis Clinical Coordinator, University of Iowa Health Care
- Nicole Reynaud, RN, BSN, Hemophilia Nurse Coordinator, Louisiana Center for Bleeding and Clotting Disorders