NHPCC Engage Webinars

This webinar is focused on sharing practical information to overcome challenges related to insurance in the HTC setting. Presenters will share how their HTC teams support patients in making insurance decisions, as well as their strategies for navigating insurance processes – such as prior authorizations and denials – among HTC team members.

Becky Burns, Chief Operating Officer of the Bleeding and Clotting Disorders Institute, located in Peoria, IL, will share information on supporting patients in the selection of insurance plans. She will highlight key considerations for patients with bleeding disorders, ways that HTC staff can support patients in making insurance decisions, and areas of caution when selecting an insurance plan. Shanna Mattis, Social Worker with the Hemophilia of Georgia Center for Bleeding & Clotting Disorders of Emory, will demonstrate how her HTC troubleshoots when a patient doesn’t have access to medications based on their insurance coverage. Erin Kavanagh, Executive Director of the Louisiana Center for Bleeding and Clotting Disorders, will discuss how her HTC manages expectations around insurance with patients, how the HTC team collaborates across disciplines and departments to navigate insurance approvals and denials, and the role the HTC team plays in calmly reassuring patients about insurance. Finally, My Nguyen, Pharmacist and PA with the University of South Florida HTC, will describe key elements in insurance prior authorizations and the strategies and tools his team uses to avoid and respond to denials.

This webinar is free and open to all disciplines working in an HTC. CEUs are available for physicians, nurses, nurse practitioners, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners) and ATHN. Please join us!

This webinar is the first in a series of three session jointly hosted by the Foundation for Women and Girls with Blood Disorders (FWGBD) and the National Hemophilia Program Coordinating Center (NHPCC). The series will explore the ages and stages in working with girls and women with bleeding disorders: adolescence, reproductive years, and menopause years. We begin in July with a focus on adolescence.

This first session will feature presenters Dr. Asha Davidson, Registered Nurse Tate Denison, and Dr. Neethu Menon, all from the Gulf States Hemophilia and Thrombophilia Center’s Young Women with Bleeding Disorders Clinic (YWBD) in Houston, Texas. The American College of Obstetricians and Gynecologists (ACOG) Committee Opinion Number 785 notes that 75-80% of girls and women with an inherited bleeding disorder report heavy menses as the most commonly mentioned symptom of their disorder, underscoring the importance of this topic. For this webinar, presenters will describe their interdisciplinary approach to management of heavy menstrual bleeding in adolescent patients, treatment of iron deficiency, and evaluation and treatment of underlying bleeding disorders. They will describe the benefits of having an adolescent medicine specialist in this clinic, which helps expand their ability to address psychosocial needs (eating disorders, anxiety, depression) along with obesity and nutrition issues, and reproductive health. Speakers will also share operational information about the flow of the clinic, the role of the nurse within the multidisciplinary team, the variety of communication tools the team employs, and tips on overcoming obstacles that could come up in the management of bleeding disorders in young women.

This webinar is free and open to all disciplines working within a bleeding and clotting clinic/center. CEUs are available for MDs, nurses, nurse practitioners, physician assistants, and social workers. This webinar is jointly provided by Partners for Advancing Clinical Education (Partners), ATHN, and the FWGBD. Please join us!

This webinar will focus on the importance of bone health for individuals living with bleeding disorders. Our three presenters will discuss different aspects of supporting patients to build and maintain good bone health. Dr. Divya Citla, pediatric hematologist/oncologist with the Arkansas Center for Bleeding Disorders, will provide a brief overview of bone physiology and discuss how bone health is impacted in people with bleeding disorders. Dr. Citla will then share findings from her recently published study focused on bone health screening at HTCs across the United States. Physical Therapists Lora Joyner, of the East Carolina University HTC, and Nikki Clark, formerly with the University of Colorado Hemophilia and Thrombosis Center and currently an instructor in the Physical Therapy Program at the University of Colorado, will discuss bone health from the physical therapy perspective. They will provide an introduction to MASAC Document 291 – Physical Therapy Management for Bone Health in People with Bleeding Disorders, and discuss tips for healthcare providers on implementing bone health assessments and other interventions in the HTC to support patients. Finally, presenters will discuss how other disciplines within the HTC (nursing, social work) also play an important role in screening for and promoting good bone health by supporting patients to engage in physical activity and facilitating DEXA scans. This webinar is free and open to all HTC disciplines. Free CEUs are available. Please join us!