NHPCC Engage Webinars

This webinar will highlight three recently completed HTC quality improvement (QI) projects focused on healthcare transition. Emily Valentino, Hemophilia Nursing Coordinator with the Bronson Hemophilia Treatment Center, will provide an overview of her HTC’s process of establishing a transition policy within the context of a larger institution, including the process of working with institution-wide policy staff and communicating the policy to patients and families. Zahara Jones, Clinical Research Coordinator with the UCSF Benioff Children's Hospitals Oakland & San Francisco, will discuss her team’s efforts to create and improve a transition readiness assessment through Plan-Do-Study-Act cycles, building on staff and patient feedback to create a clear and useful assessment that will help to inform other aspects of the HTC’s transition approach. Lisa Cohen, Program Manager with the New Jersey Regional Hemophilia Program, will share about her HTC’s QI project focused on tracking and monitoring the delivery of the transition readiness assessment to transition-age patients, along with how the HTC team is iteratively refining the delivery of the transition readiness assessment to patient and the tracking of results.  Presenters will discuss the planning and implementation of their QI projects, challenges and successes, lessons learned, the benefits of the project for patents and/or HTC staff, and where they plan to take their QI efforts next.  This webinar is free and open to all HTC disciplines. Free CEUs are available. Please join us!

This webinar will focus on what one HTC is learning about working with aging patients. Presenters from Versiti’s Comprehensive Center for Bleeding Disorders, in Milwaukee, WI, will share a case study that highlights how the HTC supported the aging patient living with hemophilia, as well as staff reflections on this work. Presenters will share how they approached this specific case from their own disciplines, and their lessons learned to inform future work with aging patients. Presenters will touch on identifying older adults at higher risk for falls, managing comorbidities, addressing transportation issues and living arrangements, navigating family support or lack thereof, and more. Speakers will highlight each discipline’s role in creating a realistic plan for each patient. This webinar is free and open to all HTC disciplines. Free CEUs are available. Please join us!

This webinar will focus on reaching Amish communities, a geographically dispersed and underserved population residing in large swaths of the US. Amish people are known for living simply with minimal to no use of modern technology. In addition, many Amish communities do not routinely use standard medical or medical insurance. Because of their geographic isolation and large families, inherited bleeding disorders are more concentrated in affected Amish communities. On this webinar, Irene Boehlefeld, with the Hemostasis and Thrombosis Center at Akron Children's Hospital, Jen Maahs, with the Indiana Hemophilia and Thrombosis Center, and Kathaleen Schnur, with the Hemophilia Center of Western Pennsylvania, will discuss their work with Amish communities. Speakers will touch on how their HTCs interact with Amish patients and families, how their HTCs approach care and build relationships and trust, and how their HTCs interact with other systems (such as local hospitals) to support Amish patients. To provide real-world examples, speakers will also incorporate a patient case throughout the presentations. This webinar is relevant to any HTC actively working with Amish communities, as well as to HTCs seeking to reach any underserved population with the aim of establishing mutual respect and trusting relationships. This webinar is free and open to all disciplines. Free CEUs are available. Please join us!

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN. There is no cost associated with this webinar.

During this webinar, three speakers will share how their HTCs are increasing patient access to care both during and outside of regular clinic appointments. Rebecca Babkiewicz will discuss Hemophilia of Georgia’s (HoG) approach to establishing outreach clinics that take care of patients using a mix of in-person care and telehealth. She will discuss how this approach has increased HoG’s ability to reach patients in certain geographic areas, including those lost to follow up due to transportation barriers. Tami Bullock, of University of Iowa Health Care, will provide an overview of her HTC’s community nurse program, and how it’s been designed to complement in-person care at the HTC and support patients in successfully caring for their bleeding disorders at home. Finally, Nicole Reynaud, of the Louisiana Center for Bleeding and Clotting Disorders, will discuss her HTC’s approach to providing nursing phone coverage 24/7 through a rotating nursing schedule and can provide in home infusion services through Acadian Health after hours to prevent unnecessary trips to ER. Each speaker will discuss how their HTC decided to implement that specific approach and share practical implementation tips, lessons learned, and future plans. This webinar is free and open to all disciplines. Free CEUs are provided. Please join us!

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN. There is no cost associated with this webinar.