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Popular Search bakerathnhealthy peoplequality improvementtransition
HTC-PTC

HTC-PTC

1
  • Hemophilia Treatment Center Physical Therapy Collaborative Operational Guidelines
Medical Home

Medical Home

1
  • HTC QI Project: Improving Pediatric Comprehensive Care by Bridging the Gap in Services Related to Patient Access to Dental Care and Treatment
Motivational Interviewing

Motivational Interviewing

1
  • NHPCC: Conducting Quality Improvement Project Using Motivational Interviewing in Patient and Family Engagement
Patient and Family Engagement

Patient and Family Engagement

3
  • Enhancing Communication through Quality Improvement at the Hemophilia Center
  • NHPCC Quality Improvement: Sample Aim Statements for Patient and Family Engagement
  • VUMC Clinic Bingo
Physical Therapy

Physical Therapy

16
  • 4 Favorite Core Moves
  • Advanced Yoga Poses
  • Fall Risk Screen Resource
  • Full Body Strengthening
  • How to Use a Cane
  • HTC PTC Functional Bibliography of Peditaric Milestones
  • Low Impact Pool Workout
  • Physical Therapist Bleeding Disorder Educational Opportunities and Resources
  • PT Evaluation Resource List
  • PT Exam Decision Pathway for Comprehensive Clinic
  • PT exam UE and LE functional Screen Items
  • PT Phone Triage Template
  • Resources for PT comp clinic efficiency screen exam
  • Virtual Learning Posture Tips
  • Work/Employment Questionnaire
  • Yoga Poses for Beginniners
QI: General

QI: General

15
  • Increasing Quality Improvement Capability for a Hemophilia Treatment Center: Rady Children’s Hospital San Diego
  • Moving Forward Together
  • National Hemophilia Program Coordinating Center Quality Improvement Initiatives
  • NHPCC QI Checklist
  • NHPCC QI Pilot Coach Engagement Group
  • NHPCC QI Progress Tool
  • NHPCC Quality Improvement Webinar Series: Collecting, Managing, Measuring and Sharing Data
  • NHPCC Quality Improvement Webinar Series: Establishing, Evaluating, and Accomplishing Goals
  • NHPCC Quality Improvement Webinar Series: Maintaining Continuous Quality Improvement Work
  • NHPCC Quality Improvement Webinar Series: QI 101
  • NHPCC Quality Improvement Webinar Series: Read First
  • NHPCC Quality Improvement: the ATHN Coach Perspective
  • Quality Improvement at the HTCs: Successes and Challenges
  • The ATHN/NHPCC Action Guide
  • The ATHN/NHPCC Action Guide for Improving Care for People with Bleeding Disorders
RHN Open Access

RHN Open Access

13
  • A Model for a Regional System of Care to Promote the Health and Well-Being of People with Rare Chronic Genetic Disorders
  • Capacity Building for Rare Bleeding Disorders in the Remote Commonwealth of the Northern Mariana Islands
  • Capacity Building for Rare Bleeding Disorders in the Remote Commonwealth of the Northern Mariana Islands
  • Economic Burden of Illness among Persons with Hemophilia B from HUGS Vb: Examining the Association of Severity and Treatment Regimens with Costs and Annual Bleed Rates
  • Men with severe hemophilia in the United States: birth cohort analysis of a large national database
  • MSHN QI Efforts
  • Patient satisfaction with US Hemophilia Treatment Center Care, Teams and Services: The First National Survey
  • Patient Satisfaction with US HTC Care, Teams and Services: the first national survey
  • Physical activity and health outcomes in persons with haemophilia B
  • Rituximab Monotherapy is Effective For Inhibitor Eradication with Concomitant Porcine Factor VIII Followed by Emicizumab for Bleed Control in Acquired Hemophilia A
  • Self-Reported Barriers to Hemophilia Care in People with Factor VIII Deficiency
  • US Hemophilia Treatment Center population trends 1990-2010: patient diagnoses, demographics, health services utilization
  • Young adults with hemophilia in the U.S.: demographics, comorbidities, and health status
Transition

Transition

45
  • A Team Quality Improvement Initiative for Improving Transition from Pediatric to Adult Care: Building an Infrastructure
  • Adolescent Transition Quality Improvement Collaborative: The Yale HTC Experience
  • Assessment of Transition Needs for Hemophilia Patients Age 12-18: A Quality Improvement Initiative for Transition from Pediatric to Adult Care
  • Building Transitioning Through Communication: A Unique Experience at Gulf States Hemophilia and Thrombophilia Center
  • CCBD Transition to Adulthood Program: Certificate of Achievement
  • CCBD Transition to Adulthood Program: Transition Completion Form
  • CCBD Transition to Adulthood Program: Transition Tool for Teenager, 13-18 yo
  • CCBD Transition to Adulthood Program: Transition Tool for Young Adult, 19-26 yo
  • CIBD’s Transition Journey: (Don’t Stop Believin’) In Ordering Factor
  • Comprehensive Center for Bleeding Disorders (CCBD) Pediatric Transition Chart Tool
  • Factoring It In: Increasing the Number of Patients Who Order Their Own Factor Between the Ages of 17-22
  • Hemophilia and Thrombosis Center of Nevada – How to use the HTCNV Transitions Assessment Tool
  • Hemophilia and Thrombosis Center of Nevada – Transition Assessment and Education Tool
  • Implementation of a Transition Focused Quality Improvement Program to Increase Self-Advocacy in Patients with Bleeding Disorders
  • Improving Patient Care and Transition Services for Teens and Young Adults
  • Journey to Best Outcomes in Hemophilia Transition: Enhancing Quality on the Pathway to Independence
  • Knowledge Assessment and Disease Awareness in Transition Age Hemophilia Patients
  • Measuring Transition Needs of Pediatric Patients with Bleeding Disorders
  • NHPCC Transition of Care Case Study: Mountain States
  • NHPCC Transition of Care Case Study: Western New York BloodCare
  • Patient Experience of Care (PEC) Survey: Instructions for HTC Providers
  • Patient Experience of Care Survey (English)
  • Patient Experience of Care Survey (Spanish)
  • Patient Experience of Care Survey Project Overview
  • Patient Experience of Care Survey, HTC How to Get started
  • Patient Experience of Care Survey, Patient Instructions (English)
  • Patient Experience of Care Survey, Patient Instructions (Spanish)
  • QI Transition Project Questionnaire
  • QI Transition Project Questionnaire
  • Transition Milestone Matching Game
  • Transition Milestones (ages 12-13)
  • Transition Milestones (ages 12-13)
  • Transition Milestones (ages 14-16)
  • Transition Milestones (ages 14-16)
  • Transition Milestones (ages 17-19)
  • Transition Milestones (ages 17-19)
  • Transition Milestones (ages 20-22)
  • Transition Milestones (ages 20-22)
  • Transition Miletone Matching Game
  • Transition to Adult Care in Hemophilia: Breaking Down Barriers for Patients and Staff
  • Transition to Independence: A Collaborative Team Approach to Improve Care and Self Advocacy
  • Transitioning Patients with Hemophilia from Pediatric to Adult Care: A Quality Improvement Initiative
  • Transitioning Bleeding Disorder Patients from Pediatric to Adult Care: The Kansas City Treatment Center Approach
  • Vanderbilt Hemostasis Treatment Center – Clinic Bingo
  • VUMC Guide to Adult Care

RN

  • Comprehensive Center for Bleeding Disorders (CCBD) RN Orientation Guide
National Hemophilia Program Coordinating Center
The NHPCC is funded through the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under the Comprehensive Hemophilia Diagnostic and Treatment Centers’ grant #UC8MC24079. The information and content provided here are those of the NHPCC and should not be construed as the official position or policy of, nor should any endorsements be inferred by, HRSA, HHS, or the U.S. government.
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