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Economic Burden of Illness among Persons with Hemophilia B from HUGS Vb: Examining the Association of Severity and Treatment Regimens with Costs and Annual Bleed Rates

In this article are presented the results of a survey provided to patients with hemophilia B to determine the US societal burden of illness, including direct and indirect costs and annual bleed rate (ABR), followed by examination of associations between hemophilia severity and treatment regimens with costs and ABR. From the Hematology Utilization Group Study (HUGS), internationally recognized US HTC Research Collaborative Examining cost illness burden.

Author(s):
Chen, Baker, Nichol
Date:
September, 2017

Document Type:

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National Hemophilia Program Coordinating Center
The NHPCC is funded through the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under the Comprehensive Hemophilia Diagnostic and Treatment Centers’ grant #UC8MC24079. The information and content provided here are those of the NHPCC and should not be construed as the official position or policy of, nor should any endorsements be inferred by, HRSA, HHS, or the U.S. government.
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