Capacity Building for Rare Bleeding Disorders in the Remote Commonwealth of the Northern Mariana Islands

The US Pacific Commonwealth of the Northern Mariana Islands is home to an underserved hemophilia population. We successfully developed and implemented a strategy in 2014 to build sustainable island-wide medical, patient and family, and community support for this rare disease, proved feasible, efficient, and effective in increasing knowledge and reducing patient and professional isolation, serving as a model for improving capacity for orphan diseases in underresourced areas.