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Regional Hemophilia Networks (RHNs)

A Model for a Regional System of Care to Promote the Health and Well-Being of People with Rare Chronic Genetic Disorders

Date: 2005

US Hemophilia Treatment Center population trends 1990-2010: patient diagnoses, demographics, health services utilization

Date: 2013

Capacity Building for Rare Bleeding Disorders in the Remote Commonwealth of the Northern Mariana Islands

Date: 2013

Men with severe hemophilia in the United States: birth cohort analysis of a large national database

Date: 2016

Young adults with hemophilia in the U.S.: demographics, comorbidities, and health status

Date: November 30, 2015

Physical activity and health outcomes in persons with haemophilia B

Date: August 25, 2014

Rituximab Monotherapy is Effective For Inhibitor Eradication with Concomitant Porcine Factor VIII Followed by Emicizumab for Bleed Control in Acquired Hemophilia A

Date: August 1, 2021

Self-Reported Barriers to Hemophilia Care in People with Factor VIII Deficiency

Date: December, 2011

MSHN QI Efforts

Date: August 1, 2021

Patient satisfaction with US Hemophilia Treatment Center Care, Teams and Services: The First National Survey

Date: October 23, 2020

Capacity Building for Rare Bleeding Disorders in the Remote Commonwealth of the Northern Mariana Islands

Date: April 1, 2016

Economic Burden of Illness among Persons with Hemophilia B from HUGS Vb: Examining the Association of Severity and Treatment Regimens with Costs and Annual Bleed Rates

Date: September, 2017

Patient Satisfaction with US HTC Care, Teams and Services: the first national survey

Date: 2020

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The NHPCC is funded through the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under the Comprehensive Hemophilia Diagnostic and Treatment Centers’ grant #UC8MC24079. The information and content provided here are those of the NHPCC and should not be construed as the official position or policy of, nor should any endorsements be inferred by, HRSA, HHS, or the U.S. government.

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