A Model for a Regional System of Care to Promote the Health and Well-Being of People with Rare Chronic Genetic Disorders Date: 2005
US Hemophilia Treatment Center population trends 1990-2010: patient diagnoses, demographics, health services utilization Date: 2013
Capacity Building for Rare Bleeding Disorders in the Remote Commonwealth of the Northern Mariana Islands Date: 2013
Men with severe hemophilia in the United States: birth cohort analysis of a large national database Date: 2016
Young adults with hemophilia in the U.S.: demographics, comorbidities, and health status Date: November 30, 2015
Rituximab Monotherapy is Effective For Inhibitor Eradication with Concomitant Porcine Factor VIII Followed by Emicizumab for Bleed Control in Acquired Hemophilia A Date: August 1, 2021
Patient satisfaction with US Hemophilia Treatment Center Care, Teams and Services: The First National Survey Date: October 23, 2020
Capacity Building for Rare Bleeding Disorders in the Remote Commonwealth of the Northern Mariana Islands Date: April 1, 2016
Economic Burden of Illness among Persons with Hemophilia B from HUGS Vb: Examining the Association of Severity and Treatment Regimens with Costs and Annual Bleed Rates Date: September, 2017