Reference Hub

HTC

Reference Category

Hemophilia Treatment Centers (HTCs)

Quick Note Template for Essential Care Plan Elements

Multidisciplinary Follow Up List for Comp Clinic

Hemlibra authorization template

WSRHN HTC Comprehensice Clinic Workflow

HTC Discharge Instructions

Individualized Health Plan

Fluid Restriction

Dentist Information Form

Children’s Hospital Los Angeles – General Information

Children’s Hospital Los Angeles – Medications for Heavy Periods (Spanish)

Children’s Hospital Los Angeles – Meet the Team

DDAVP SubQ Instructions

Delivery Guidelines for Factor VIII Carriers

Knowledge Assessment and Disease Awareness in Transition Age Hemophilia Patients

Umbilical Cord Sampling for Newborn Factor VIII Levels

Poster: Rituximab Monotherapy is Effective For Inhibitor Eradication with Concomitant Porcine Factor VIII Followed by Emicizumab for Bleed Control in Acquired Hemophilia A – Presented at NHF BDC 2021

Poster: Continuous infusion of B domain-truncated recombinant factor VIII, turoctocogalfa, for an acute moderate bleeding episode in hemophilia A: a first case report – Presented at NHF BDC 2020

Poster: The Use of Emicizumab for Acquired Hemophilia A at US Hemophilia Treatment Centers – presented at ISTH 2021

Thrombophilia Testing: When? Who? Why?

Thrombosis and Thrombophilia

Mary M. Gooley Hemophilia Center Pediatric ED Presentation

Emergency Care of a Patient with Hemophilia

Comprehensive Center for Bleeding Disorders (CCBD) RN Orientation Guide

Letter template for inactive HTC Patients

Multidisciplinary Care Coordination Note Template

Creation of a Neonatal Thrombosis Center and its Use to Successfully Treat Infants with Severe Thromboses

Date: January 21, 2021

Umbilical Cord Sampling for Coagulation Testing

Date: October 1, 2017

US Hemophilia Treatment Center population trends 1990-2010: patient diagnoses, demographics, health services utilization

Date: January 1, 2013

VWD Academy for Latin America “Advanced Workshop” Schedule Agenda

Date: December 1, 2019

VWD Academy for Latin America “Basic Workshop” Schedule Agenda

Date: June 1, 2019

X-File – Newsletter from the University of Miami/Miller School of Medicine Hemophilia Treatment Center

Date: July 1, 2020

The Use of Emicizumab for Acquired Hemophilia A at US Hemophilia Treatment Centers

Date: July 1, 2021

University of Miami Hemophilia Treatment Center Welcome Brochure

Date: January 20, 2021

IHTC Care Matters – Published article

Date: March 1, 2019

Needle Phobia: What’s Helpful and What is Not – Tips for smoother, less traumatic infusions

Date: September 21, 2021

A Model for a Regional System of Care to Promote the Health and Well-Being of People with Rare Chronic Genetic Disorders

Date: November 1, 2005

Burden of illness: direct and indirect costs amongpersons with hemophilia A in the United States

Date: March 9, 2015

Continuous infusion of B domain-truncated recombinant factor VIII, turoctocogalfa, for an acute moderate bleeding episode in hemophilia A: a first case report

Date: August, 2020

Creation of a Neonatal Thrombosis Center and its Use to Successfully Treat Infants with Severe Thromboses

Date: January, 2021

Injectable DDAVP- Patient Instruction Sheet

Date: October 1, 2020

Delivery Guidelines for Factor VIII Carriers

Date: July, 2016

Hemophilia Treatment Centers: Improving Health Outcomes and Reducing Costs

Date: October 27, 2014

Hemophilia: 100 year story

Date: April 18, 2021

Hemophilia and Thrombosis Center of Hawaii Discharge Instructions

Bleeding Disorder Comprehensive Care – NEW STAFF ORIENTATION CHECKLIST

Date: n/a

Orientation for New HTC Staff Guidelines

Date: n/a

NHPCC: Family Planning for Hemophilia Carriers

Date: 2019

NHPCC: Access to Care Clinic Outreach – A technical assistance checklist

Date: 2020

ATHN 1: A Cross-Sectional Analysis of Cardiovascular Disease in the Hemophilia Population – Blood Advances Publication

Date: 2018

Impact of the 340B Pharmacy Program on Services and Supports for Persons Served by Hemophilia Treatment Centers in the United States – published in the Maternal and Child Health Journal

Date: 2018

340B Drug Program: Making a Difference in Patients’ Lives – Video (short)

Date: 2017

340B Drug Program: Making a Different in Patients’ Lives – Video (long)

Date: 2017

Lessons Learned from the Development of an Educational Curriculum for Potential and Confirmed Female Carriers of Hemophilia

Date: n/a

Expanding Telemedicine to Medical Homes for Comprehensive Care Delivery for Persons with Hemostatic disorders: A pilot study of the American Thrombosis and Hemostasis Network/National Hemophilia Program Coordinating Center

Date: n/a

340B Drug Pricing Program

Date: 2014

Genetic Counseling for the Inherited Bleeding Disorders Community

Date: 2019

Before and After Genetic Testing

Date: 2019

New HTC Staff Orientation

Date: n/a

A Demonstration Project Evaluating a Nurse Practitioner Medically Led Hemophilia Treatment Center in Comparison to a Physican Medically Led Hemophilia Treatment Center

Date: n/a

Enter your search criteria to find works by title, author, keyword(s), or date.

The NHPCC is funded through the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under the Comprehensive Hemophilia Diagnostic and Treatment Centers’ grant #UC8MC24079. The information and content provided here are those of the NHPCC and should not be construed as the official position or policy of, nor should any endorsements be inferred by, HRSA, HHS, or the U.S. government.

© 2023 ATHN. ATHN is a 501(c)(3) tax exempt organization.
Privacy Statement Terms of Use Reference Hub Submission