Reference Hub

For Patients

Reference Category

VUMC Guide to Adult Care

VUMC Clinic Bingo

Genetics of Hemophilia

The Legacy of HTCs: Learn about their history, successes, and new challenges

Hemophilia Treatment Centers: Improving Health Outcomes and Reducing Costs

Recruitment of Staff

Overview of HTC

What is Comprehenisve Care?

Special Coagulation laboratory services

Women and Girl’s clinic

Understanding Your Healthcare Coverage and Benefits

Comprehensive Center for Bleeding Disorders (CCBD) Platelet Function Defect Infosheet

Comprehensive Center for Bleeding Disorders (CCBD) Hereditary Thrombophilia Infosheet

Comprehensive Center for Bleeding Disorders (CCBD) Menstruation and Bleeding Disorders Infosheet

Mayo Clinic Patient Education: Hemophilia

Mayo Clinic Patient Education: Understanding Von Willebrand Disease (VWD)

UNC HTC General Patient Pamplet

Managing Your Oral Health and Bleeding Disorder (Pediatrics)

Managing Your Oral Health and Bleeding Disorder (Adult)

VUMC Comprehensive Clinic Brochure – Adults

VUMC Comprehensive Clinic Brochure – Pediatric

Eddy the Teddy – VUMC Hemlibra Guide Book

Hemophilia and Child Development: Teens

Hemophilia and Child Development: Preschool

Hemophilia and Child Development: School Age

University of North Carolina at Chapel Hill HTC – General Patient Pamplet

Date: February 1, 2020

Understanding Your Healthcare Coverage and Benefits

Date: October 1, 2021

Vanderbilt Hemostasis Treatment Center – Comprehensive Clinic Brochure – Adults

Date: December 1, 2020

Vanderbilt Hemostasis Treatment Center – Comprehensive Clinic Brochure – Pediatric

Date: December 1, 2020

What are Platelet Disorders?

What is Hemophilia?

What is Von Willebrand Disease (Espanol – Que es La Enfermedad de Von Willebrand?)

What is Von Willebrand Disease?

Rare Bleeding Disorder: Factor VII – Brochure

Date: October 1, 2020

Rare Bleeding Disorder: Factor XI – Brochure

Date: October 1, 2020

Rare Coagulation Factor Deficiencies

Sexual Health and Bleeding Disorders – Brochure for patients

Date: January 1, 2017

Sexual Health and Bleeding Disorders – Brochure for patients (Spanish version)

Date: January 1, 2017

Hemo-noticias on prophylaxis, Spanish language newsletter for patients

Date: October 1, 2021

Hemo-noticias on transition of care, Spanish language newsletter for patients

Date: October 21, 2021

Hemophilia Treatment Center (HTC) FAB TOGETHER! Newsletter of the HTC Family Advisory Board at St. Jude Affiliate Clinic at Novant Hemby Children’s Hospital

Date: July 1, 2020

Subcutaneous Injection Teaching Tool for Patients and Families

Date: June 1, 2021

University of Miami Hemophilia Treatment Center Local & National Resources for Patients

Date: July 21, 2021

Managing Your Oral Health and Bleeding Disorder (Adult) – Brochure by the UNC Adams School of Dentistry

Date: February 1, 2021

Managing Your Oral Health and Bleeding Disorder (Pediatric) – Brochure by the UNC Adams School of Dentistry

Date: February 1, 2021

Medications for Heavy Periods (Spanish)

Children’s Hospital Los Angeles – Meet the Team

Information for Patients and Providers: Musculoskeletal Ultrasound in Bleeding Disorders

Date: September 1, 2020

Information for Patients and Providers: Musculoskeletal Ultrasound in Bleeding Disorders (Spanish)

Date: September 20, 2021

Parenting 101 Keeping Babe Safe: Baby Safety & Developmental milestones – Brochure for patients

Date: May 19, 2021

Patient Safety Initiative: MedicAlert Application Form

Date: January 20, 2021

Children’s Booklet: An Old Dog… A manual for parents and grandparents about the symptoms and treatment of Hemophilia

Date: August 1, 2020

Children’s Booklet: Von Willebrand & Me: A Book for Teen Girls

Date: February 1, 2020

Eddy the Teddy – VUMC Hemlibra Guide Book

Date: January 1, 2021

General Information and frequently asked questions for patients at Children’s Hospital, Los Angeles

Date: 2021

Heavy/Irregular Menstrual Bleeding – Guide from the University of Miami Hemophilia Treatment Center

Date: October 1, 2020

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The NHPCC is funded through the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under the Comprehensive Hemophilia Diagnostic and Treatment Centers’ grant #UC8MC24079. The information and content provided here are those of the NHPCC and should not be construed as the official position or policy of, nor should any endorsements be inferred by, HRSA, HHS, or the U.S. government.

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