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NHPCC Engage Webinar

Developing and Implementing Healthcare Transition Policies in Hemophilia Treatment Centers

Once you view the webinar recording, please complete one of the following evaluations based on your interest in CEUs.

To learn more about CEUs offered for the NHPCC Engage Webinars, please review this document.

  • If you are not pursuing CEUs at all, please visit this link to complete the course evaluation.
  • If you are pursuing Physical Therapy CEUs, please visit this link and complete the required quiz and course evaluation.
  • If you are pursuing other CEUs – including those for physicians (MD or DO), nurses, nurse practitioners, physician assistants, or social workers, or you need a certificate to petition for credit from your Board - please visit this link and complete the required course evaluation.

 

If you have any questions, please email nhpcc@athn.org.

Original Webinar Date: August 14, 2023

 from 3:00 pm

 - 4:00 pm

 EST

Description:

During this webinar, presenters will discuss their hemophilia treatment centers’ (HTC) transition policies that support the move from pediatric to adult healthcare. Presenters will discuss approaches to establishing their policies and how transition policies are being implemented. Jacqueline Bottacari, of the Yale Hemophilia Center, will share her HTC’s process establish a transition policy that incorporated input from all disciplines. Lourdes Arvelo, social worker with John’s Hopkins All Children's Hospital Hemophilia Treatment Center, will discuss how her HTC iteratively developed a transition policy with parent/caregiver input along the way, and how the policy guides transition education and goal setting with patients and parents/caregivers. Beth Merz, social worker with the Johns Hopkins University Medical Center, will share background on how her HTC established its transition policy and will discuss key elements of policy implementation. Presenters will share key components of their transition policies, lessons learned, and possible future directions.

This webinar is jointly provided by Partners for Advancing Clinical Education (PACE) and ATHN and is subcontracted to Redefine Health Education for PT/PTA CE credit in many states. There is no cost associated with this webinar.

CE Broker # for PT CEUs: Live = 20-1096288, On-Demand = 20-1096292

Learning Objectives:
At the conclusion of this webinar, participants will be able to:
  1. Describe how transition policies benefit and support hemophilia treatment centers’ healthcare transition efforts and activities with patients and families.
  2. Discuss at least two examples of how hemophilia treatment centers have approached establishing a transition policy.
  3. List key components of transition policies as shared by presenters.
Presenters:
  • Lourdes Arvelo, LCSW, Johns Hopkins All Children's Hospital, Cancer & Blood Disorders Institute/Hemophilia Treatment Center
  • Jacqueline Bottacari, LCSW, Yale Center for Bleeding and Clotting Disorder
  • Beth Merz, LCSW, Johns Hopkins Hemophilia Treatment Center